CUTIS LAXA : News
NEW CONTACTS, NEW FAMILIES
Cutis Laxa Internationale now gathers 501 patients coming from…
UNITED NATIONS AND INTERNATIONAL NEWS
16th December2021 The United Nations General Assembly voted the…
NEW MUTATIONS
4 new genetic mutations were recently found:
LOX :…
LOX :…
Diagnosis Roving and Deadlock
The workgroup of FIMARAD (Rare Dermatologic Disorders French…
AND ALSO …. IN 2021
29th September 2021
Webinar on e-Health with the French Skin…
Webinar on e-Health with the French Skin…
ERN-Skin : Cutis Laxa Webinar
14th December 2021
Pr Bert CALLEWAERT and Pr Raoul ENGELBERT
shared…
Pr Bert CALLEWAERT and Pr Raoul ENGELBERT
shared…
DERMATOLOGY DAYS OF PARIS
1st, 2nd & 3rd December 2021
For the first time this year…
For the first time this year…
FRENCH FEDERATION FOR SKIN – CONFERENCE AND ANNUAL MEETING
30th November 2021
The 3rd Conference of the French Federation…
The 3rd Conference of the French Federation…
French Health Minister’s message
30th November
The 3rd Conference of the French Federation for…
The 3rd Conference of the French Federation for…
FIMARAD – ANNUAL MEETING
25th-26th November
FIMARAD (French Network for Rare…
ERN-Skin EXECUTIVE COMMITTEE
23rd November 2021
ERN-Skin Executive Committee
Taking…
ERN-Skin Executive Committee
Taking…
ePAGS ANNUAL MEETING
4th-5th November
All ePAGS joint annual meeting with Eurordis…
All ePAGS joint annual meeting with Eurordis…
IN THE MEDIA
6th October : Le Dauphiné – Bons en Chablais :
On the…
On the…
PINK OCTOBER AND BLUE WALK
26th September 2021 , 3rd, 9th and 16th October 2021
…
…
GLOBALSKIN ANNUAL MEETING
29th September 2021 : Globalskin Annual Meeting.
The International…
The International…
NEW MUTATIONS
Even if I cannot tell you more since publications have not yet…
Our « Big Cutis Laxa Family » grows day after day.
Its new members : Joanna, Ayse and her two brothers, Delphine,…
In the Media
They talk about Cutis Laxa :
On 16th March, Chiara’s testimony…
On 16th March, Chiara’s testimony…
The French Federation for SKIN (FFP) is working hard
Since the beginning of the year, Georges Martinho, FFP General…
ERN-Skin Activities
19th February : First ERN-Skin Scientific Day
114 doctors and…
114 doctors and…
workgroups, training and information for Patient Representatives (ePAGS
On 18th March
« Good Practice : How to measure results, What…
« Good Practice : How to measure results, What…
The first half of the year was quite busy with Eurordis
On 12th May : Annual Members meeting
on 10th June : Annual…
on 10th June : Annual…
Cutis Laxa Videos ……… N°8 ……. last one
Here is the 8th .....and last.....of our videos
"Advice and…
"Advice and…
Cutis Laxa Videos …… N°7
Treatments and surgeries are the topics of our 7th video about…
Patients’ inequalities of treatment
Patients’ inequalities of treatment
(Opinion piece published…
(Opinion piece published…
Cutis Laxa Videos …. N°6
Let's watch the 6th episode of our videos about Cutis Laxa.
Today…
Today…
Cutis Laxa Videos …… N°5
Today's topic is our organisation "Cutis Laxa Internationale"…
Cutis Laxa Videos …… N°4
Today I talk about the impact of the disorder in adulthood: love…
Cutis Laxa Videos …….. N°3
Here is the third episode of our videos.
A painful and emotional…
A painful and emotional…
Cutis Laxa Videos….. N°2
Here is the 2nd episode of the Cutis Laxa videos.
Marie-Claude…
Marie-Claude…
Cécile talks about Cutis Laxa
Here is a new video that has just been posted on social media.
Cécile…
Cécile…
Cutis Laxa Videos…… N°1
Here is the first of 8 videos edited by EwenLife on their Youtube…
They talk about us !!
EwenLife is dedicated to rare disorders. They made an interview…