CUTIS LAXA : News
They left this world
Alas, our Cutis Laxa Family is once again in mourning.
Tammy…
Tammy…
Welcome
Marie, Rachel, Gavin Du, Meryem and Hassan Ali, Atyaf, Adam,…
Back in 2001
Cecile first appeared in the media on September 12, 2001.
This…
This…
RareDERM Coffee-Chat
September 22nd:
Marie-Claude Boiteux moderated the…
Marie-Claude Boiteux moderated the…
Cutis Laxa in Japan
12th September 2026:
The 7th Cutis Laxa Days sometimes…
The 7th Cutis Laxa Days sometimes…
3rd World Congress on Rare Skin Disorders (WCRSD)
1st-3rd July 2026:
The 3rd World Congress on Rare Skin Disorders…
The 3rd World Congress on Rare Skin Disorders…
In the Media
June 2026
Young Dermatologists Review:
"From loneliness to…
Young Dermatologists Review:
"From loneliness to…
Caving for Cutis Laxa
20th and 21st June 2026:
Roxanne’s parents are passionate…
Roxanne’s parents are passionate…
Mental Health Figures in Rare Skin Diseases
In June 2026, RareBarometer, Eurordis' polling organisation,…
Sireuil Triathlon
13th June :
For its 20th edition, the Sireuil Triathlon ran…
For its 20th edition, the Sireuil Triathlon ran…
International Forum of Dermatology
12th June :
International Forum of Dermatology organised…
International Forum of Dermatology organised…
Orphanet in Figures
Orphanet is a netw ork spreading over 40 countries in Europe…
79th World Health Assembly (WHA)
20th May :
Rare Disease Internationale (RDI) had organised…
Rare Disease Internationale (RDI) had organised…
Skiing for the children
20th, 21st and 22nd march
The « Glisse en cœur » days were…
The « Glisse en cœur » days were…
Cardiovascular problems in Cutis Laxa
Dr Ilse MEERSCHAUT
According to a study of 469 patients with…
According to a study of 469 patients with…
Acquired Cutis Laxa
Pr. Bert CALLEWAERT
see the presentation
This type of Cutis…
see the presentation
This type of Cutis…
New classification of Cutis Laxa types
Dr A.Beyens presented the long piece of work that analized the…
They left this world
We are so sad, our Big Cutis Laxa Family has just lost two of…
New Patients, New Families
Sara and her sister Abeer, Bennett, Tucker, Eileen, Youssef,…
Transmission and testing during pregnancy in case of a genetic disorder
Dr Candy KUMPS et Dr Sofie SYMOENS
see the presentation
For…
see the presentation
For…
Physiotherapy and Cutis Laxa
Dr Inge DEWANDELE
see the presentation
Our joints allow our…
see the presentation
Our joints allow our…
Ophtalmologic issues in Cutis Laxa
Dr Lana HOEBEKE
See the presentation
Elastic Fibers are present…
See the presentation
Elastic Fibers are present…
Study about Teleexpertise in dermatology in a French region
TeleExpertise in dermatology
Marie-Claude Boiteux led a study …
Marie-Claude Boiteux led a study …
Tropoelastin deposition to treat elastic fiber diseases ?
Dr Romain DEBRET
See the presentation
25 years ago, when…
See the presentation
25 years ago, when…
MAPPING RARE
28th February
On the occasion of Rare Disease Day 2026, Rare…
On the occasion of Rare Disease Day 2026, Rare…
CUTIS LAXA PATIENT JOURNEYS
NEW PATIENT JOURNEYS
We have developed 2 patient journeys based…
We have developed 2 patient journeys based…
Poem for a woman diagnosed with Cutis Laxa
She had been told that it would be difficult
She had been…
She had been…
25 Years ago……
A flagship show of the 1990s and 2000s, "Ça se discute" (“It’s…
ERN-Skin Board Meeting
11th-12th December
Members of ERN-Skin got together for…
Members of ERN-Skin got together for…
And in the Media…..
8th October :
Doctissimo press release :
« Skin Diseases -…
Doctissimo press release :
« Skin Diseases -…
Dermatology Days of Paris
2nd December
The 7th Conference of the French Federation for…
The 7th Conference of the French Federation for…
Triathlon de Sireuil
On 21st November 2025,
the town of Sireuil handed a €2,000…
the town of Sireuil handed a €2,000…
The role of ERNs in boosting EU competitiveness through public-private partnerships
Together for Rare Diseases (Together4RD) has published a report…