CUTIS LAXA : News
The Heroes’ Run
Cutis Laxa Internationale will participate in the “Heroes’…
LA PASTOURELLE
The Sports event "La Pastourelle" dedicated a special run
"The…
"The…
SPORTSMEN AND SPORTSWOMEN SUPPORT US
2025 will be a great year !
We are supported by big sports events
8th-10th…
We are supported by big sports events
8th-10th…
Astrazeneca awarded its « Scientific Prize 2024 » to Pr Bert Callewaert .
On 12th December 2024, Astrazeneca awarded its « Scientific…
Thesis on cases of Cutis Laxa
Dr Thatjana Gardeitchik was a successful candidate with her thesis…
In the Media
02nd September 2024
Info-Chalon (newspaper) Official opening…
Info-Chalon (newspaper) Official opening…
In our hearts and thoughts
Alas, we are very sad to let you know about two deaths:
Lucille,…
Lucille,…
Online Activities
According to the rythm established in 2024, attending numerous…
Dermatology Days of Paris
03rd-06th December 2024
Dermatology Days of Paris (JDP)
Thanks…
Dermatology Days of Paris (JDP)
Thanks…
6th Conference of the French Federation for Skin (FFP)
03rd December 2024
6th Conference of the French Federation for…
6th Conference of the French Federation for…
La Sorbonne University of the Patients
Marie-Claude Boiteux was interviewed for the videos used during…
Patient Forum
26th November 2024
Pfizer Patient Forum
Marie-Claude…
Pfizer Patient Forum
Marie-Claude…
THANK YOU
A huge THANK YOU to the leading team of the sport events organised…
FIMARAD Annual Meeting
08th November 2024
FIMARAD Annual Meeting
Patient organisation…
FIMARAD Annual Meeting
Patient organisation…
European Elastin Meeting
28th-31st October 2024
European Elastin Meeting (EEM 2024) in…
European Elastin Meeting (EEM 2024) in…
ERN-Skin Board Meeting
24th-25th October 2024
ERN-Skin Board Meeting at “Institut…
ERN-Skin Board Meeting at “Institut…
“Exp’Ose Ta Peau” (dare to show your skin)
16th -17th Septembre 2024 the event “Exp’Ose Ta Peau” (dare…
Cutis Laxa : What’s new
Cutis Laxa update
During the World Congress in Paris in June…
During the World Congress in Paris in June…
New Contacts, Families’ News
Daniella, Lucie, Sara, Jamila, Shelley, MDMBen, Mirxan, Maya…
World Health Assembly (WHA) Resolution on Rare Diseases
On 30th August 2024, Rare Diseases International (RDI), the Arab…
Infographics
5 % of the global population are suffering from a rare disorder
Equity…
Equity…
CONECT PROJECT
After two years of hard work, the CONECT project (Cardio-Ocular…
On-line Activities
These are extremely numerous so it is difficult to give all details…
World Congress on Rare Skin Diseases
The most important event for rare skin disorders was held in…
Interview with Pr.Bert Callewaert
All you need to know about Cutis Laxa, all your questions are…
Bringing Skin Patients’ voice to WHO
In Geneva,
taking the opportunity of the World Health Assembly,
on…
taking the opportunity of the World Health Assembly,
on…
European Disability Card
Members of the European Parliament approved the provisional…
Scotland publishes first Genomic Medicine Strategy
The 2024-2029 plan intends to create a more coordinated genomic…
In Belgium, the Federation RaDiOrg for rare disorders publishes propositions for a better future for people living with a rare disorder.
The current Belgian Plan for Rare Disorders was established in…
IN THE MEDIA
06th March 2024 Le Monde (French Newspaper)
Rare Disorders -…
Rare Disorders -…
NOT JUST MY SKIN
The World Skin Health Coalition (WSHC) ended its campaign «…
Sweden launches its first national strategy on Rare Disorders
The National Council for Health and Well-Being (CNSB) identifies…
Canada takes steps towards improving rare disease care.
The network RareKids-CAN and the Canadian Network for Rare Disorders…