Sweden launches its first national strategy on Rare Disorders

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The National Council for Health and Well-Being (CNSB) identifies four priorities to elaborate the strategy : Building a project based on patient groups’ needs and reaching a consensus on aims and priorities ; relying on existing structures of care and taking into account the role of the different stakeholders ;  focusing on the clarification of roles and spreading knowledge ; remaining in the field of responsibility of health and medical care. A public consultation is ongoing.

(orphanews 2024.03.18)