All human beings, wherever they are born, in whichever country, whichever continent, are submitted to the same genetic laws. Even if our personal genetic code is unique, the Human Genome Map is universal.
When you are concerned by a rare genetic disease, staying inside your native borders may be synonymous to not being taken in charge of by scientific research, and living with great loneliness.
For an example read the Story of our Association
Setting up contacts with sufferers and their families worldwide allowed isolation and loneliness to be broken for each one of us. Most of all, doctors and scientists have understood a research was possible because there were enough cases.
All continents are represented among our members : Europe, America, Oceania , Asia, and Africa.