WE ARE STARTING A GREAT STORY…
ALL TOGETHER

CREATING AWARENESS, PROMOTING RESEARCH & UNITING PATIENTS

On 13th, 14th, 15th and 16th September 2022
the 6th Cutis Laxa Days
were held at the University Hospital of Ghent (Belgium)

Patients

Uniting the patients worldwide

You are visiting the website of the Patients’ Support Group
“Cutis Laxa Internationale” .

Our pages are dedicated to all those who are concerned by this rare genetic disorder Cutis Laxa:
sufferers, sufferers’ families, but also health professionnals and all people interested in rare disorders issues.

We do not accept any advertising nor receive any funds from advertisements.

SKIN RARE DISORDERS AND COVID-19

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You want to come in contact with (other) patients?
If you are a patient, patient’s parents, doctor or a researcher,
we invite you to join our support group on facebook

(private) facebook group

You are looking for the name and address of a doctor who knows about Cutis Laxa and could answer your questions?
Go to the

List of doctors

We need you !

Help us by sending us your membership fee or a donation

We are members and/or partners of (Click on their logo to access their websites) :