Distribution of CL according to Types and Countries

Our census of  Cutis Laxa patients allows today to establish its breakdown by known types and also by countries You can find here the table updated on 2024, February 12th

The Cutis Laxa “Patient Journey”

The “Patient Journey” seeks to identify the needs that are specific to individual syndromes. To achieve this, patient representatives completed a mapping exercise of the needs of each rare inherited syndrome they represent, across the different stages of the Patient Journey. This is the definition of the Patient Journey as mentioned in this article published […]