CUTIS LAXA : News
Rare and I live with it
Cécile was interviewed by Handicap.fr for their new podcast
"Rare…
"Rare…
Handicap.fr – Podcast « Rare Disorder and I live with it » episode 9 : Cécile’s testimony
Read this article (in French)
Listen to the Podcast…
Listen to the Podcast…
Daily newspaper « Charente Libre » : The Triathlon of Sireuil presented CLI with a cheque
Read this article (in French)
Canal JDP
On 3rd December 2022, during the Dermatology Days of Paris (JDP),
organised…
organised…
Weekly newspaper « Télé7jours » : Sophie Davant remembers the 10th Cutis Laxa patient discovered during Telethon 2001.
read this article (in French)
Public.fr : Sophie Davant, French journalist, tells how the Telethon 2001 supported the first research on CL
Read this article (in French)
Journal Radiorg (Belgium)
28th February 2022 :
Grand Angle : Journal Radiorg (Belgium)
Testimony…
Grand Angle : Journal Radiorg (Belgium)
Testimony…
La Gazette Bonsoise
Winter 2022 :
La Gazette Bonsoise : Associations’ Life :…
La Gazette Bonsoise : Associations’ Life :…
NEW MUTATIONS
4 new genetic mutations were recently found:
LOX :…
LOX :…
NEW MUTATIONS
Even if I cannot tell you more since publications have not yet…
In the Media
They talk about Cutis Laxa :
On 16th March, Chiara’s testimony…
On 16th March, Chiara’s testimony…
Cutis Laxa Videos ……… N°8 ……. last one
Here is the 8th .....and last.....of our videos
"Advice and…
"Advice and…
Cutis Laxa Videos …… N°7
Treatments and surgeries are the topics of our 7th video about…
Cutis Laxa Videos …. N°6
Let's watch the 6th episode of our videos about Cutis Laxa.
Today…
Today…
Cutis Laxa Videos …… N°5
Today's topic is our organisation "Cutis Laxa Internationale"…
Cutis Laxa Videos …… N°4
Today I talk about the impact of the disorder in adulthood: love…
Cutis Laxa Videos …….. N°3
Here is the third episode of our videos.
A painful and emotional…
A painful and emotional…
Cutis Laxa Videos….. N°2
Here is the 2nd episode of the Cutis Laxa videos.
Marie-Claude…
Marie-Claude…
Cécile talks about Cutis Laxa
Here is a new video that has just been posted on social media.
Cécile…
Cécile…
Cutis Laxa Videos…… N°1
Here is the first of 8 videos edited by EwenLife on their Youtube…
They talk about us !!
EwenLife is dedicated to rare disorders. They made an interview…
CUTIS LAXA WHITE BOOK
Since Cutis Laxa Internationale was set up, we have received…
20 YEARS AGO ……
Cécile was diagnosed in 1992.
8 years later, she appeared…
8 years later, she appeared…
Living with …. Cutis Laxa
The French monthly magazine "La Revue du Praticien" (The Medical…
6th CUTIS LAXA DAYS
SAVE THE DATES
The 6th Cutis Laxa Days will be held at the…
The 6th Cutis Laxa Days will be held at the…
Watch Cecile’s interview
WHAT IS AN ERN (European Reference Network) ? (Videos)
Set up 3 years ago by the European Commission, they aim to help…
CLI VIDEO ON YOUTUBE
The French Skin Federation (FFP) has launched videos (in French)…
Dawn Laney, a RARE Hero
In its issue N°15, April 2020, Rare Revolution Magazine, talks…
David Ross, a RARE revolutionary
In its issue N°15, april 2020, Rare Revolution Magazine publishes…
ZEYNEP’S STORY
Video on SHOW TV, on facebook, about Zeynep diagnosed with Cutis…
Cécile suffers from a rare genetic disorder
CAFFE.ch, swiss online magazine (in Italian)
2019.05.05
Read…
2019.05.05
Read…
I AM 28, BUT MY SKIN LOOKS LIKE 65
L'illustré, swiss newspaper (in French)
2019.02.06
Watch…
2019.02.06
Watch…