EwenLife is dedicated to rare disorders. They made an interview with Marie-Claude Boiteux to publish videos talking about Cutis Laxa: what it is, the diagnosis, treatments, Cutis Laxa Internationale, etc
Once a week, on sunday, they will edit one video. And there are 8 videos. We are sorry there was no funds to get them subtittled in English we hope you can understand French.
Here is the teaser announcing the videos on their facebook page
They also talked about Cutis Laxa on their facebook page
Here is their Youtube channel where the videos are posted.
ENJOY watching them !