Cecile first appeared in the media on September 12, 2001.
This program “Ca se discus”, whose title was “How to be good in your skin”, was the trigger for the story of “Cutis Laxa International” because it allowed for the first time to talk about the disease, but above all to let the patients know that they were not alone and that we were “At the beginning of a Great Story…. All together”
A flagship show of the 1990s and 2000s, “Ça se discute” (“It’s debatible”) made its comeback sixteen years after the end of its broadcast on France 2. On RMC Life, channel 25 of the TNT, Estelle Denis succeeds Jean-Luc Delarue for shows that are as moving and captivating as ever.
On February 03, 2026, at the end of the show dedicated to eating disorders, Cécile Boiteux-Gueye was invited to talk about her journey since her participation in the show on September 12, 2001, when she was only 11 years old.
This very first program in which Cécile participated was the beginning of the great story of Cutis Laxa International because it is thanks to this program that other patients contacted us, that other programs took place with Cécile and that the patients, isolated, were able to get in touch with us.
There were 9 of us at the time, today there are more than 580.
Thank you “Ca se discute”
January 2025 :
CNRS Micro-Conference « Elasticity of life » especially with Pr Romain Debret on youtube (in French) :
Marie-Claude Boiteux was interviewed for the videos used during the Masterclass at the University for Patients in La Sorbonne (in French) (https://universitedespatients-sorbonne.fr/). The title of the presentation is “From loneliness to an International Organisation”. see it here (in French)
Dave Jacob, founder fo ThinkGenetic, featured on the Grey Genetics Patient Stories Podcast on 30th January 2024.
He recounts his diagnostic journey, which ultimately led to a diagnosis of Cutis Laxa.
He shares how his personal experience as a rare disease patient inspired the inception of both ThinkGenetic Inc. and ThinkGenetic Foundation.
Give a listen
2023.04.19
Cécile was interviewed on the French Radio “Europe 1” in Olivier Delacroix’s broadcast “Free on-air : No judgement, no taboos, an open conversation” (in French)
Surgery or Not Surgery , (In French)
https://www.tiktok.com/@cecisuisse/video/7197483094016888070