Does “Gaston Lagaff”, cartoon character, have Ehlers-Danlos Syndrom ?

Humorous, but very serious

Pr Mickaël Dinomais, Professor in Physical and Readaptation Medicine, at the University of Angers (France), published a very interesting article.

He studied the famous French cartoon character “Gaston Lagaff” and, considering all the clinical features and symptoms, could diagnose that he suffers from Ehlers-Danlos Syndrom.

This is a very interesting and entertaining way to describe a disorder.

Read the all article, in French, at :

http://theconversation.com/gaston-lagaffe-a-t-il-un-syndrome-delhers-danlos-130907

 

FIMARAD VIDEOS

YOUTUBE CHANNEL FOR RARE DERMATOLOGIC DISEASES

 

The French Network for rare dermatologic diseases has launched its youtube channel wher are posted videos about various issues (French talking):

Aesthetic Disability  

https://www.youtube.com/watch?v=WO0FlVQ1B2k

 

Local Houses for Disabled People (MDPH)

https://www.youtube.com/watch?v=WO0FlVQ1B2k

 

Corrective Make-up

https://www.youtube.com/watch?v=US7frbb9atw

ZEYNEP’S STORY

Video on SHOW TV, on facebook, about Zeynep diagnosed with Cutis Laxa

(In Turkish)

2019.12.10

Watch the video :

2 Yaşındaki Zeynep "Yaşlanma Hastalığı" ile mücadele ediyor! #ZahideYetişle

2 Yaşındaki Zeynep "Yaşlanma Hastalığı" ile mücadele ediyor! #ZahideYetişle

Publiée par Show TV sur Mardi 10 décembre 2019

MOHAMMED IN AUSTRIA

WHO HELPS MOHAMMED ?

Same article (in Dutch) in the newspapers

“De Morgen” (Belgium) and “De Volkskrant” (Austria).

2019.12.01

Read the article online : https://www.demorgen.be/nieuws/wie-helpt-mohamad-hoe-liefdadigheid-een-syrisch-gezin-in-oostenrijk-verstikte~b0765328/

Or here : http://www.cutislaxa.org/wp-content/uploads/2020/02/De-Morgen-et-De-Volkskrant-Mohammed-2019.12.01.pdf

Cécile suffers from a rare genetic disorder

CAFFE.ch, swiss online magazine (in Italian)

2019.05.05

Read the article on line :

http://www.caffe.ch/stories/Storie/62873_ho_appena_28_anni_ne_dimostro_il_doppio/

I AM 28, BUT MY SKIN LOOKS LIKE 65

L’illustré, swiss newspaper (in French)

2019.02.06

Watch the video : https://www.facebook.com/1081337022/posts/10215330750396949/

Read the article : http://www.cutislaxa.org/wp-content/uploads/2020/02/lillustre-2019.02.06.pdf

“He is a real scamp”

12th January 2018 :

Article in Voralberg’ newspaper (Germany) about Mohammed after the video report.

Read the whole article at :

https://www.vn.at/lokal/vorarlberg/2019/01/11/er-ist-ein-richtiger-lausbub.vn

Mohammed’s new life in Germany

28 Décembre 2018 :

Mohammed’s new life in Germany (Mohammed is a Syrian refugee suffering from CL)

(broadcast in Arabic and English in some parts)

https://m.facebook.com/story.php?story_fbid=10217703840526118&id=1183293593

Chiara, RAI2 (Italian television), broadcast DettoFatto

16th November 2018 :

RAI2 (Italian television), broadcast DettoFatto, report on Chiara’s face reconstruction surgery.

See the report on

https://www.facebook.com/DettoFattoRai2/videos/181625632784663/

« Marie-Claude Boiteux, a volunteer mother fighting for her daughter suffering from an orphan disorder »

Le Dauphiné Libéré 2018.02.07