CUTIS LAXA : News
4th Conference of the French Federation for Skin (Report)
29th November 2022 :
4th Conference of the FFP on the theme…
4th Conference of the FFP on the theme…
Public.fr : Sophie Davant, French journalist, tells how the Telethon 2001 supported the first research on CL
Read this article (in French)
FIMARAD ANNUAL METING
24th & 25th November 2022 :
National and Scientific Days…
National and Scientific Days…
Journal Radiorg (Belgium)
28th February 2022 :
Grand Angle : Journal Radiorg (Belgium)
Testimony…
Grand Angle : Journal Radiorg (Belgium)
Testimony…
La Gazette Bonsoise
Winter 2022 :
La Gazette Bonsoise : Associations’ Life :…
La Gazette Bonsoise : Associations’ Life :…
NEW MUTATIONS
4 new genetic mutations were recently found:
LOX :…
LOX :…
Diagnosis Roving and Deadlock
The workgroup of FIMARAD (Rare Dermatologic Disorders French…
ERN-Skin : Cutis Laxa Webinar
14th December 2021
Pr Bert CALLEWAERT and Pr Raoul ENGELBERT
shared…
Pr Bert CALLEWAERT and Pr Raoul ENGELBERT
shared…
DERMATOLOGY DAYS OF PARIS
1st, 2nd & 3rd December 2021
For the first time this year…
For the first time this year…
French Health Minister’s message
30th November
The 3rd Conference of the French Federation for…
The 3rd Conference of the French Federation for…
NEW MUTATIONS
Even if I cannot tell you more since publications have not yet…
In the Media
They talk about Cutis Laxa :
On 16th March, Chiara’s testimony…
On 16th March, Chiara’s testimony…
Cutis Laxa Videos ……… N°8 ……. last one
Here is the 8th .....and last.....of our videos
"Advice and…
"Advice and…
Cutis Laxa Videos …… N°7
Treatments and surgeries are the topics of our 7th video about…
Cutis Laxa Videos …. N°6
Let's watch the 6th episode of our videos about Cutis Laxa.
Today…
Today…
Cutis Laxa Videos …… N°5
Today's topic is our organisation "Cutis Laxa Internationale"…
Cutis Laxa Videos …… N°4
Today I talk about the impact of the disorder in adulthood: love…
Cutis Laxa Videos …….. N°3
Here is the third episode of our videos.
A painful and emotional…
A painful and emotional…
Cutis Laxa Videos….. N°2
Here is the 2nd episode of the Cutis Laxa videos.
Marie-Claude…
Marie-Claude…
Cécile talks about Cutis Laxa
Here is a new video that has just been posted on social media.
Cécile…
Cécile…
Cutis Laxa Videos…… N°1
Here is the first of 8 videos edited by EwenLife on their Youtube…
They talk about us !!
EwenLife is dedicated to rare disorders. They made an interview…
CUTIS LAXA WHITE BOOK
Since Cutis Laxa Internationale was set up, we have received…
The French Federation for Skin published its plea
The French Federation for skin is publishing its plea aiming…
Living with a Rare Disorder in France
Orphanet has just edited its new study about rare disorders in…
RARE 2030
On 23rd February 2021, celebrating 2021 Rare Disease Day, Eurordis…
20 YEARS AGO ……
Cécile was diagnosed in 1992.
8 years later, she appeared…
8 years later, she appeared…
Living with …. Cutis Laxa
The French monthly magazine "La Revue du Praticien" (The Medical…
e-Book edited by the French Federation for Skin (FFP)
FFP has just issues its first e-book on :
"Cutaneous disorders…
"Cutaneous disorders…
CUTIS LAXA PATIENT JOURNEYS
We have developped 2 patient journeys based on testimonies from…
6th CUTIS LAXA DAYS
SAVE THE DATES
The 6th Cutis Laxa Days will be held at the…
The 6th Cutis Laxa Days will be held at the…
Watch Cecile’s interview
WHAT IS AN ERN (European Reference Network) ? (Videos)
Set up 3 years ago by the European Commission, they aim to help…