CUTIS LAXA : News
20 minutes Brut on line : « Suffering from Cutis Laxa, Amélie, 18, looks like a 60 y.o. woman »
Read this article (in French)
VISIBLE DISORDERS OF THE SKIN
Podcast « Visible disorders of the skin » :
Visible disorders…
Visible disorders…
Dermatology on the brink
IN THE MEDIA
An article was published in the online pages of…
An article was published in the online pages of…
Daily newspaper « Le Monde » editorial « Dermatology is on the brink »
Read the translation in English
Read the original article in…
Read the original article in…
Dermatology and Venereology Meeting 2023
2nd & 3rd March 2023 :
The National Union of Dermatologists-Venereologists…
The National Union of Dermatologists-Venereologists…
The ethics of prenatal diagnosis
A recent article published in “Maternal Health, Neonatology,…
Monthly newspaper « Le Trombinoscope » – dossier on Rare Disease Day « patients face taxing times and their organisations too ! »
read this article (in French)
Daily newspaper « Le Monde » Grand Angle : dossier on Rare Disease
Read this article (in French
Cécile’s Short Videos N°5
About Cutis Laxa International (in French)
https://www.tikt…
https://www.tikt…
Cécile’s Short Videos N°4
Thank you Mum for all you do for the patients (in French)
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Cécile’s Short Videos N°3
Cutis Laxa is in all the body (in French)
https://www.tikto…
https://www.tikto…
Cécile’s Short Videos N°2
I have never lost HOPE that my dream will come true (in Fren…
Teachers’ role in the inclusion of students with rare diseases
A new study published in “Frontiers in Psychology” investigated…
Cécile’s short videos N°1
What is Cutis Laxa (in French)
https://www.tiktok.com/@ceci…
https://www.tiktok.com/@ceci…
ERN-Skin ANNUAL BOARD MEETING
13th January 2023 :
ERN-Skin Board Meeting.
2023 is a transitional…
ERN-Skin Board Meeting.
2023 is a transitional…
A NEW MUTATION : EMILIN1
Adamo et al. describe a cutis laxa syndrome caused by bi-allelic…
Youtube with “Tibo InShape”
New video
Cécile was interviewed by #Tibo InShape on his youtube…
Cécile was interviewed by #Tibo InShape on his youtube…
Good-Bye ERIC
I am so very sad to announce that Eric MOLINIE left this world…
4th National Conference of the French Federation for Skin (Videos)
Watch the videos of all the presentations (in French)
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New Patients
Cutis Laxa Internationale now gathers 517 patients coming from…
UKRAINE
As war still goes on, Ukraine faces a humanitarian crisis and…
GOOD-BYE
Time to go home….. It is so hard to leave each other.
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Breaks and Fun Times
SYMPOSIUM LUNCH BREAK
CHILDREN GAMES
BOAT…
CHILDREN GAMES
BOAT…
Diner Times
PIZZAS
CHINESE WOK
FESTIVE DINER
CHINESE WOK
FESTIVE DINER
Gathering beyond continents…. Patients, Moms and Dads
Prof. Dr. Christine Bodemer, MD (Paris, France) : Embedding CL in ERN Skin & ERN-Ithaca
The European Reference Networks (ERNs) set up by the European…
Mrs Klára Farkas, MD (Budapest, Hungary) : Potential applications and value of novel skin imaging techniques in connective tissue disorders
In this presentation we introduce novel imaging techniques including…
Dr. Laura Muiño Mosquera, MD (Ghent, Belgium) : Cardiovascular Follow-up in CL
Cutis Laxa disorders usually present cardiovascular issues…
Prof. Dr. Bert Callewaert (Ghent – Belgium) : CL Classification and Guidelines for Global Management
This new classification will simplify the diagnostic process…
16th September 2022 – Collaboration in Recherche
The aim of this event dedicated to research was to set up collaborative…
13th and 14th September CLINICS
Pr Bert Callewaert, Dr Karolien Aelbrecht, Mrs Deborah Wille…
Dr. Karolien Aelbrecht (Ghent, Belgium) : Patient participation : a cornerstone !
Although the concept of patient participation still lacks of…
Mrs Elif Yilmaz Gulec, MD (Istanbul, Turkey) : Cutis Laxa in Turkey : Challenges, Opportunities and Collaborations
Our Cutis Laxa patients are usually referred to us during neonatal…