CUTIS LAXA : News

Other Events in 2022
1st February: Pharmaceuticals Seminar
10th April : Our…
December 20, 2022/by Marie-Claude10th April : Our…

Rare and I live with it
Cécile was interviewed by Handicap.fr for their new podcast
"Rare…
December 19, 2022/by Marie-Claude"Rare…

Canal JDP
On 3rd December 2022, during the Dermatology Days of Paris (JDP),
organised…
December 3, 2022/by Marie-Claudeorganised…

National Events in France in 2022
3rd February:
Workshop with the National Service for Solidarity…
November 15, 2022/by Marie-ClaudeWorkshop with the National Service for Solidarity…

International Events in 2022
IADPO-GLOBALSKIN (International Alliance of Dermatology Patients…
October 15, 2022/by Marie-Claude
European Events in 2022
ERN-Skin :
14thJanuary : Annual Meeting
10th March:…
September 30, 2022/by Marie-Claude14thJanuary : Annual Meeting
10th March:…

1st WORLD CONGRESS ON RARE SKIN DISORDERS
The 1st WCRSD (First International Congress on Rare Skin Disorders)…
June 10, 2022/by Marie-Claude
In the Media
1st March 2022 :
Le Monde – Tribune Grand Angle :
What…
April 15, 2022/by Marie-ClaudeLe Monde – Tribune Grand Angle :
What…

Journal Radiorg (Belgium)
28th February 2022 :
Grand Angle : Journal Radiorg (Belgium)
Testimony…
February 28, 2022/by Marie-ClaudeGrand Angle : Journal Radiorg (Belgium)
Testimony…

La Gazette Bonsoise
Winter 2022 :
La Gazette Bonsoise : Associations’ Life :…
February 2, 2022/by Marie-ClaudeLa Gazette Bonsoise : Associations’ Life :…

NEW CONTACTS, NEW FAMILIES
Cutis Laxa Internationale now gathers 501 patients coming from…
February 1, 2022/by Marie-Claude
UNITED NATIONS AND INTERNATIONAL NEWS
16th December2021 The United Nations General Assembly voted the…
January 20, 2022/by Marie-Claude
NEW MUTATIONS
4 new genetic mutations were recently found:
LOX :…
January 15, 2022/by Marie-ClaudeLOX :…

Diagnosis Roving and Deadlock
The workgroup of FIMARAD (Rare Dermatologic Disorders French…
January 5, 2022/by Marie-Claude
AND ALSO …. IN 2021
29th September 2021
Webinar on e-Health with the French Skin…
December 30, 2021/by Marie-ClaudeWebinar on e-Health with the French Skin…

ERN-Skin : Cutis Laxa Webinar
14th December 2021
Pr Bert CALLEWAERT and Pr Raoul ENGELBERT
shared…
December 15, 2021/by Marie-ClaudePr Bert CALLEWAERT and Pr Raoul ENGELBERT
shared…

DERMATOLOGY DAYS OF PARIS
1st, 2nd & 3rd December 2021
For the first time this year…
December 5, 2021/by Marie-ClaudeFor the first time this year…

FRENCH FEDERATION FOR SKIN – CONFERENCE AND ANNUAL MEETING
30th November 2021
The 3rd Conference of the French Federation…
December 1, 2021/by Marie-ClaudeThe 3rd Conference of the French Federation…

French Health Minister’s message
30th November
The 3rd Conference of the French Federation for…
November 30, 2021/by Marie-ClaudeThe 3rd Conference of the French Federation for…

FIMARAD – ANNUAL MEETING
25th-26th November
FIMARAD (French Network for Rare…

ERN-Skin EXECUTIVE COMMITTEE
23rd November 2021
ERN-Skin Executive Committee
Taking…
November 25, 2021/by Marie-ClaudeERN-Skin Executive Committee
Taking…

ePAGS ANNUAL MEETING
4th-5th November
All ePAGS joint annual meeting with Eurordis…
November 6, 2021/by Marie-ClaudeAll ePAGS joint annual meeting with Eurordis…

IN THE MEDIA
6th October : Le Dauphiné – Bons en Chablais :
On the…
October 30, 2021/by Marie-ClaudeOn the…

PINK OCTOBER AND BLUE WALK
26th September 2021 , 3rd, 9th and 16th October 2021
…
October 16, 2021/by Marie-Claude…

GLOBALSKIN ANNUAL MEETING
29th September 2021 : Globalskin Annual Meeting.
The International…
September 29, 2021/by Marie-ClaudeThe International…

NEW MUTATIONS
Even if I cannot tell you more since publications have not yet…
August 5, 2021/by Marie-Claude
Our « Big Cutis Laxa Family » grows day after day.
Its new members : Joanna, Ayse and her two brothers, Delphine,…
August 4, 2021/by Marie-Claude
In the Media
They talk about Cutis Laxa :
On 16th March, Chiara’s testimony…
July 31, 2021/by Marie-ClaudeOn 16th March, Chiara’s testimony…

The French Federation for SKIN (FFP) is working hard
Since the beginning of the year, Georges Martinho, FFP General…
July 15, 2021/by Marie-Claude
ERN-Skin Activities
19th February : First ERN-Skin Scientific Day
114 doctors and…
June 15, 2021/by Marie-Claude114 doctors and…

workgroups, training and information for Patient Representatives (ePAGS
On 18th March
« Good Practice : How to measure results, What…
June 11, 2021/by Marie-Claude« Good Practice : How to measure results, What…

The first half of the year was quite busy with Eurordis
On 12th May : Annual Members meeting
on 10th June : Annual…
June 11, 2021/by Marie-Claudeon 10th June : Annual…

Cutis Laxa Videos ……… N°8 ……. last one
Here is the 8th .....and last.....of our videos
"Advice and…
May 25, 2021/by Marie-Claude"Advice and…