World Congress on Rare Skin Diseases

The most important event for rare skin disorders was held in Paris from 12th to 14th June.

The  World Congress on Rare Skin Disorders (WCRSD) gathered together doctors, researchers,patients and industries.

 The patient’s point of view was at the core of common interests with a plenary session organised by the patients which attracted over 150 participants.

The session gave a voice to patient representatives coming from South America, Africa, Nepal and the Philippines.

Two other sessions provided a large space for patients’ participation.

One was dedicated to Patient Education Programmes

and the other touched on the future and how to increase our togetherness to improve diagnosis and treatments.

These were three intense days full of exchanges, discussions and future projects for patients’ improved condition.