AND ALSO …. IN 2021

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29th September 2021

Webinar on e-Health with the French Skin Federation

 

 

1st October  2021

Bersot Estate Agency gave us a € 300 chéque. They had proposed to their clients to make a donation to the organisation they had chosen for each transaction. A huge thank you to them.

 

 

14th October 2021

Webinar : Integration of ERNs in National Health Systems – Care Pathways

 

 

 

26th – 27th October 2021

AMEQUIS workshop. The global aim was to simplify and improve the revalidation steps for ERNs when applying for reassessment.

 

 

 

ERN-Skin : Cutis Laxa Webinar

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14th December 2021

Pr Bert CALLEWAERT and Pr Raoul ENGELBERT

shared the latest results of the work done by the Mendelian Connective Tissue Disorders thematic group in ERN-Skin.

Especially regarding the latest finding on Cutis Laxa Syndroms. The classification is still in progress.

 

DERMATOLOGY DAYS OF PARIS

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1st, 2nd & 3rd December 2021

For the first time this year we had a stall during the Dermatology Days of Paris.

With its conferences, pharmaceutic and cosmetic laboratories stalls, Associations’ village,

 

and e-posters, there’s no need to demonstrate the richness of those days.

It was the opportunity for many exchanges with health professionals as well as with association leaders,

all concerned by dermatology.

FRENCH FEDERATION FOR SKIN – CONFERENCE AND ANNUAL MEETING

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30th November 2021

The 3rd Conference of the French Federation for Skin (FFP) was opened by Mr Olivier Véran, French Minister of Health and Solidarity.

Watch his message here (in French) : https://www.youtube.com/watch?v=Bvm0lmixr7E

Convinced that democracy is necessary in health issues, he recognised the quality of the FFP advocacy and the real obstacle course its 21 member organisations can face.

  

FFP represents more than 20 million patients. this third  conference was an  undeniable success in bringing together high quality speakers : health Professionnals and Institutions.

 

The work of the FFP is recognised by all stakeholders in the field of dermatology.

 

After the Conference, the Annual General Meeting was held and the annual report brought to light the many achievements in 2021. The FFP member organisations elected the new board of Directors and its new Chair : Marie-Claude Boiteux

 

French Health Minister’s message

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30th November

The 3rd Conference of the French Federation for Skin was opened by Mr Olivier Véran, French Minister of Health and Solidarity. Convinced that democracy is necessary in health issues, he recognised the quality of the FFP advocacy and the real obstacle course its 21 member organisations can face.

Watch his message here (in French) : https://www.youtube.com/watch?v=Bvm0lmixr7E

 

FIMARAD – ANNUAL MEETING

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25th-26th November

FIMARAD (French Network for Rare Skin Disorders) Annual meeting

the results  of the different workgroups showed the improvments still needed.

 

 

 

ERN-Skin EXECUTIVE COMMITTEE

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23rd  November 2021

ERN-Skin Executive Committee

Taking stock of the actions and improvements achieved in 2021.

 

Online training courses, using the CPMS consultation platform,

 

setting up registries and specific activities for each thematic group were the strong points for  ERN-Skin.

ePAGS ANNUAL MEETING

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4th-5th November

All ePAGS joint annual meeting with Eurordis to help each other

 

and improve their patient representatives’ work in the ERNs.

     

These two days of hard work allowed us to establish the priorities that need to be improved

 

IN THE MEDIA

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6th October :  Le Dauphiné – Bons en Chablais :

On the occasion of « Pink October » and in partnership with the local council of Bons en Chablais, Cutis Laxa Internationale  held an information stall and sold various items.

 

11/10/21 Le dauphiné – Bons en Chablais : Pink and Blue Walk  

The health organisations of the town  were associated with the Blue Walk dedicated to elderly people and with Pink October dedicated to Breast Cancer.

 

Autumn 2021 : La Gazette Bonsoise :

Report of all the events organised on the occasion of « Pink October ».

PINK OCTOBER AND BLUE WALK

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26th September 2021  , 3rd, 9th and 16th October 2021

 

 

As part of Pink October, dedicated to breast cancer and as part of the Blue Walk, dedicated to elderly people,

         

Bons en Chablais’ local Council organised several events

             

 

that allowed CLI to collect over € 1,000. Thanks to all of you.