CLI at the Dermatology Days of Paris
29th November – 3rd December 2022 :
Dermatology Days of Paris (JDP).
Pr Dupin opened the « Associations’ Village ».
This year, CLI not only had a stall,
but we also took part in « Canal JDP » for a cross-interview with Pr Ludovic Martin « Cutis Laxa : Hope for the patients ».
Watch the video here
And our poster was also part of the official exhibition.
Canal JDP
On 3rd December 2022, during the Dermatology Days of Paris (JDP),
organised by the French Society of Dermatology,
Marie-Claude Boiteux interviewed Pr Ludovic Martin for “Canal JDP”:
4th Conference of the French Federation for Skin (Report)
29th November 2022 :
4th Conference of the FFP on the theme « Health Journey in Dermatology »
Pr Dupin, Chair of the French Society of Dermatology (SFD) and Pr Beylot-Barry, presented the challenges and prospects, further developped by Dr Sulimovic, Chair of the National Union of Dermatologists-Venereologists (SNDV), specifically regarding access to dermatologists in town (rather than in hospital). For this part, Pr Bodemer focused on issues regarding Paediatric Dermatology.
We ended the morning with a roundtable dedicated to “Holistic care of the Patient”.
We spent the afternoon in workshops to reflect on the synthesis of local meetings organised around the review of the Local Projects for Health. A great, rich, participative and interesting day, as speakers and attendees said in their comments.
And the next day we opened the FFP Stall for the Paris Dermatology Days
FIMARAD ANNUAL METING
24th & 25th November 2022 :
National and Scientific Days of the FIMARAD network for rare skin disorders.
Besides the important progress made by the network’s members, together with patient representatives in the workgroups,
it was the opportunity to strengthen the collaboration between FIMARAD and the French Federation for Skin (FFP).
National Events in France in 2022
3rd February:
Workshop with the National Service for Solidarity and Autonomy and the French Federation for Skin on Support Files given to the Local Houses for Disabled People for patients to assert their rights.
8thFebruary :
Official hearing by the National Conference for Health on the occasion of the 20th anniversary of Democracy in Health. A lot still has to be done for small organisations such as ours to continue existing and working for improvements in patients’ quality of life.
9th February :
Associations member of FIMARAD (French Network for Rare Skin Disorders) worked on the concept of Expert by Expertise, where the Patient is rightly considered an Expert.