CUTIS LAXA : News
New members
Rebecca, Sami, Robert, Anna, Zoé, Mercédes, Sarah, Emily, Elena,…
In the Media
11th March :
Local radio "Jordanne FM" interview with Philippe…
Local radio "Jordanne FM" interview with Philippe…
They left this world
Alas ! more deaths plunged us in mourning:
Nathan, Maui, Tony…
Nathan, Maui, Tony…
Pregnancy and Family Planning in Rare Disorders
Orphanet Journal of Rare Diseases published the results of…
ERN-Skin Activities
16th January 2025 : Executive Committee (on line)
This annual…
This annual…
Disabilities and Barriers in rare skin disorder
Recognising Disabilities and Barriers in rare skin disorder :…
Sports Events in Charente …. and other (France)
1st MAY in DOUZAT
The Festival Committee and the association…
The Festival Committee and the association…
2 RESOLUTIONS AT THE WORLD HEALTH ASSEMBLY
IN GENEVA
21st-22ndMay 2025 :
Marie-Claude Boiteux was there…
21st-22ndMay 2025 :
Marie-Claude Boiteux was there…
The Heroes’ Run
18th MAY in LYON (France)
A great festive moment in the heart…
A great festive moment in the heart…
LA PASTOURELLE
8th MAY in SALERS (France)
For its 25th edition, La Pastourelle,…
For its 25th edition, La Pastourelle,…
3rd MAI à BERGAME (ItalY)
Thanks to Roberto Trapletti, several towns in the Region of…
Globalskin Conference
23rd-26th April 2025 :
Globalskin had chosen Prague to held…
Globalskin had chosen Prague to held…
Elasticity of Life
January 2025 :
CNRS Micro-Conference « Elasticity of life »…
CNRS Micro-Conference « Elasticity of life »…
Stakeholders’ National Conference of Dermatology
3rd April 2025 :
Patient organisations representatives…
Patient organisations representatives…
4th National Plan for Rare Disorders in France
On 25th Février, the 4th National Plan for Rare Disorders was…
SPORTSMEN AND SPORTSWOMEN SUPPORT US
2025 will be a great year !
We are supported by big sports events
8th-10th…
We are supported by big sports events
8th-10th…
Dermatology-Venerology Meeting
30th-31st January 2025 :
Dermatology-Venerology Meeting organised…
Dermatology-Venerology Meeting organised…
Astrazeneca awarded its « Scientific Prize 2024 » to Pr Bert Callewaert .
On 12th December 2024, Astrazeneca awarded its « Scientific…
Thesis on cases of Cutis Laxa
Dr Thatjana Gardeitchik was a successful candidate with her thesis…
In the Media
02nd September 2024
Info-Chalon (newspaper) Official opening…
Info-Chalon (newspaper) Official opening…
In our hearts and thoughts
Alas, we are very sad to let you know about two deaths:
Lucille,…
Lucille,…
Online Activities
According to the rythm established in 2024, attending numerous…
Dermatology Days of Paris
03rd-06th December 2024
Dermatology Days of Paris (JDP)
Thanks…
Dermatology Days of Paris (JDP)
Thanks…
6th Conference of the French Federation for Skin (FFP)
03rd December 2024
6th Conference of the French Federation for…
6th Conference of the French Federation for…
La Sorbonne University of the Patients
Marie-Claude Boiteux was interviewed for the videos used during…
Patient Forum
26th November 2024
Pfizer Patient Forum
Marie-Claude…
Pfizer Patient Forum
Marie-Claude…
THANK YOU
A huge THANK YOU to the leading team of the sport events organised…
FIMARAD Annual Meeting
08th November 2024
FIMARAD Annual Meeting
Patient organisation…
FIMARAD Annual Meeting
Patient organisation…
European Elastin Meeting
28th-31st October 2024
European Elastin Meeting (EEM 2024) in…
European Elastin Meeting (EEM 2024) in…
ERN-Skin Board Meeting
24th-25th October 2024
ERN-Skin Board Meeting at “Institut…
ERN-Skin Board Meeting at “Institut…
“Exp’Ose Ta Peau” (dare to show your skin)
16th -17th Septembre 2024 the event “Exp’Ose Ta Peau” (dare…
Cutis Laxa : What’s new
Cutis Laxa update
During the World Congress in Paris in June…
During the World Congress in Paris in June…
New Contacts, Families’ News
Daniella, Lucie, Sara, Jamila, Shelley, MDMBen, Mirxan, Maya…