3rd World Congress on Rare Skin Disorders (WCRSD)

1st-3rd July 2026:

The 3rd World Congress on Rare Skin Disorders (WCRSD) was held at the Palais des Congress in Versailles. For this 3rd edition, a plenary session was entirely dedicated to patients.As members of the organizing committee, we had decided to highlight the work that associations do. The theme of this session was mental health in rare dermatological diseases.

Six speakers presented the publications and work done by the organisations :

Mental Wellbeing in Rare Disease;

PRIDD: Validating the Mental Health Impact of Living with a Rare Skin Disease ;

Psychological States of Loneliness, Social Isolation and Psychological Deprivation in Patients with Albinism. ;

The Profound Impact on Mental Health when Living with Ichthyosis:  A Qualitative Study ;

Interaction of Psychosocial Factors and Well-Being of Women Caring for a Sick Child: The Impact of the Child’s Level of Dependency ;

Addressing the Mental Health Needs of Rare Skin Disease Patients: Generalized Pustulous Psoriasis Care Network.

A very rich session, of great interest to the audience.

A congress as interesting as ever: moments of exchange with associative “colleagues”,

enriching presentations,

a stand to introduce ourselves,

a poster,

a session dedicated to Cutis Laxa

and a magnificent evening in the stables of the castle.

It was also an opportunity to meet members of Globalskin for a working session on rare dermatological diseases