https://www.cutislaxa.org/wp-content/uploads/2019/01/logo-ePAG.png 524 1015 Marie-Claude http://www.cutislaxa.org/wp-content/uploads/2017/12/NEW-LOGO-CLI-4.png Marie-Claude2020-11-24 18:40:102020-11-24 18:40:10CUTIS LAXA PATIENT JOURNEYS
CUTIS LAXA PATIENT JOURNEYS
We have developped 2 patient journeys based on testimonies from our members on what it is like to live with a Cutis Laxa.
Those documents aim to be a tool for health care professionals and patients during a consultation to help them agree on the best possible care on a long term basis.
They will be updated as often as needed to fit with the patients’ daily life and the most recent findings and treatments.
CUTIS LAXA WITH ARTERIES AND LUNGS SYMPTOMS
CUTIS LAXA WITH NEURO AND SKELETON SYMPTOMS