Orphanet in Figures
Orphanet is a netw ork spreading over 40 countries in Europe and beyond.
The site is accessible for free in 9 languages.
28 million pages were visited in 2025.
6,622 rares disorders with a unique identifier : ORPHA Code.
25,883 healthcare professionals referenced,
2,798 patient organisations and 31 National Alliances of rare disorders,
8,512 Expert Centers,
31,742 Diagnosis Tests,
5,605 Patient Registries,
181 biobanks ,
1,013 medical laboratories dedicated to diagnosis, …..
and so many other ressources….
