1st – 2nd June 2023
International Alliance of Dermatology Patient Organisation (IADPO-Globalskin)
held its “Elevate Conference 2023” in Brussels
Such a pleasure to meet again face-to-face …. at last ….
Worlwide Patient Organisations were represented for two days of work and great times together.
Here are some of happy times we had before we publish the report of all our hard work.
2nd & 3rd March 2023 :
The National Union of Dermatologists-Venereologists (SNDV) organised a Dermatology Venereology Meeting (RDV 2023) in “La Cité des Sciences” in Paris.
The French Federation for Skin (FFP) stall was held by Hélène Raynal, the Secretary.
During the roundtable « Information and awareness : Prevention a priority, at last », Marie-Claude Boiteux spoke as patients’ representative and brought forward patients’ contribution to further raise awareness.
These two days ended beautifully with a cabaret show offered by the SNDV.
13th January 2023 :
ERN-Skin Board Meeting.
2023 is a transitional year for all ERNs.
The first 5-year period ended in 2022. 2023 will therefore be a transition and evaluation year before a new validation by the EU for a new 5-year period to 2028.
The meeting was an opportunity to take stock of what was done and present future projects.
The European Reference Networks (ERNs) set up by the European Commission allow a collaboration between all health professionals concerned by a specific disorder throughout Europe.
They also allow the discussion of more difficult cases, online, thanks to the Clinical Patient Management System (CPMS) plateform.
In this presentation we introduce novel imaging techniques including nonlinear optical (NLO) microscopy, multispectral imaging and high-frequency ultrasounds (HFUS) to visualize the characteristic changes in Connective Tissue Disorders (CTDs).
The novel imaging techniques may prove useful in the early diagnosis of CTDs.
They may be also used for the objective follow-up of the progression of CTDs, and the assessment of the efficacy of novel therapeutic approaches in the future.
Cutis Laxa disorders usually present cardiovascular issues that need a specific follow up.
Various devices can be used such as echocardiography, CT-Scan and MRI.
Each one of those devices has its pros and cons and must be chosen according to what is examined.
