On-Line Activities

Today, a great number of meeting, working groups, workshops,etc are on line.

Here is a list of what happened during the last 6 month of 2023 :


 9th June : Working Group “Pregnancy”                  26th June : Eurordis Patient Partnership


    28th June : Pfizer Club “Real Life Data”    28th June : Pierre Fabre “Associations’ funding”


                                           10th October : G5 Health              20th October : Webinar “Lobbying”


13th November : ePAG Steering Committee

28th November : Webinar “Connective Tissue Disorders (PXE)”


11th September and 14th December : World Skin Health Coalition