ERN-Skin eNEWS
In its June 2023 issue,
ERN-Skin eNews mentionned ePAG Advocates
attending Globalskin meeting “Elevate”
and those who were honoured with an award.
Have a read
AND ALSO…….
25th November 2022 : The Triathlon of Sireuil presented CLI with a cheque
24th January 2023 : Workgroup on recognising the value of the work done by volunteers
02nd February 2023 : Working on the French Local Projects for Health
14th February 2023 : Eurordis Black Pearl Awards
9th June 2023 : European Workgroup on Pregnancy and Family Planning
22nd June 2023 : BMS SpotInfoPatients “From Patients’rights to how Patients can commit in the Health system”
26th June 2023 : Eurordis Webinar : Patient Partnership Framework in ERNs
:
Patient Representatives at Globalskin Meeting
1st – 2nd June 2023
International Alliance of Dermatology Patient Organisation (IADPO-Globalskin)
held its “Elevate Conference 2023” in Brussels
Such a pleasure to meet again face-to-face …. at last ….
Worlwide Patient Organisations were represented for two days of work and great times together.
Here are some of happy times we had before we publish the report of all our hard work.
Dermatology and Venereology Meeting 2023
2nd & 3rd March 2023 :
The National Union of Dermatologists-Venereologists (SNDV) organised a Dermatology Venereology Meeting (RDV 2023) in “La Cité des Sciences” in Paris.
The French Federation for Skin (FFP) stall was held by Hélène Raynal, the Secretary.
During the roundtable « Information and awareness : Prevention a priority, at last », Marie-Claude Boiteux spoke as patients’ representative and brought forward patients’ contribution to further raise awareness.
These two days ended beautifully with a cabaret show offered by the SNDV.
ERN-Skin ANNUAL BOARD MEETING
13th January 2023 :
ERN-Skin Board Meeting.
2023 is a transitional year for all ERNs.
The first 5-year period ended in 2022. 2023 will therefore be a transition and evaluation year before a new validation by the EU for a new 5-year period to 2028.
The meeting was an opportunity to take stock of what was done and present future projects.
GOOD-BYE
Time to go home….. It is so hard to leave each other.
Longing to meet again ……. Roll on the 7th Days …
Breaks and Fun Times
SYMPOSIUM LUNCH BREAK
CHILDREN GAMES
BOAT TOUR
Diner Times
PIZZAS
CHINESE WOK
FESTIVE DINER
Prof. Dr. Christine Bodemer, MD (Paris, France) : Embedding CL in ERN Skin & ERN-Ithaca
The European Reference Networks (ERNs) set up by the European Commission allow a collaboration between all health professionals concerned by a specific disorder throughout Europe.
They also allow the discussion of more difficult cases, online, thanks to the Clinical Patient Management System (CPMS) plateform.
