In the media Archives - Page 8 of 8 - CUTIS LAXA INTERNATIONALE

CLI VIDEO ON YOUTUBE

September 29, 2020/in In the media, News, Video /by Marie-Claude

The French Skin Federation (FFP) has launched videos (in French) from its member organisations on youtube.

Listen to Marie-Claude Boiteux talking about Cutis Laxa Internationale

Dawn Laney, a RARE Hero

April 11, 2020/in In the media, News /by Marie-Claude

In its issue N°15, April 2020, Rare Revolution Magazine, talks about Dawn Laney, Dave Jacob’s daughter, who set up Thinkgenetic with her father. Dave is one of our members.

David Ross, a RARE revolutionary

April 10, 2020/in In the media, News /by Marie-Claude

In its issue N°15, april 2020, Rare Revolution Magazine publishes an interview with David Ross, one of our members.

FIMARAD VIDEOS

February 15, 2020/in In the media, News, Research - Medicine - Genetics /by Marie-Claude

YOUTUBE CHANNEL FOR RARE DERMATOLOGIC DISEASES

The French Network for rare dermatologic diseases has launched its youtube channel wher are posted videos about various issues (French talking):

Aesthetic Disability

https://www.youtube.com/watch?v=WO0FlVQ1B2k

Local Houses for Disabled People (MDPH)

https://www.youtube.com/watch?v=WO0FlVQ1B2k

Corrective Make-up

https://www.youtube.com/watch?v=US7frbb9atw

ZEYNEP’S STORY

December 10, 2019/in In the media, News, Video /by Marie-Claude

Video on SHOW TV, on facebook, about Zeynep diagnosed with Cutis Laxa

(In Turkish)

2019.12.10

Watch the video :

2 Yaşındaki Zeynep "Yaşlanma Hastalığı" ile mücadele ediyor! #ZahideYetişle

2 Yaşındaki Zeynep "Yaşlanma Hastalığı" ile mücadele ediyor! #ZahideYetişle

Publiée par Show TV sur Mardi 10 décembre 2019