Dr A.Beyens presented the long piece of work that analized the different symptoms of all Cutis Laxa types. The files from the 192 patients of the in house cohort studied by Pr Bert Callewaert’s team as well as the cases published in literature were screened by Artificial Intelligency (AI) in order to group major symptoms […]
NEW PATIENT JOURNEYS We have developed 2 patient journeys based on testimonies from our members on what it is like to live with a Cutis Laxa. Those documents aim to be a tool for health care professionals and patients during a consultation to help them agree on the best possible care on a long term […]
New classification of Cutis Laxa types
/in Mutations, News, Research, Research - Medicine - Genetics /by Marie-ClaudeDr A.Beyens presented the long piece of work that analized the different symptoms of all Cutis Laxa types. The files from the 192 patients of the in house cohort studied by Pr Bert Callewaert’s team as well as the cases published in literature were screened by Artificial Intelligency (AI) in order to group major symptoms […]
CUTIS LAXA PATIENT JOURNEYS
/in Mutations, News, Research, Research - Medicine - Genetics /by Marie-ClaudeNEW PATIENT JOURNEYS We have developed 2 patient journeys based on testimonies from our members on what it is like to live with a Cutis Laxa. Those documents aim to be a tool for health care professionals and patients during a consultation to help them agree on the best possible care on a long term […]