16th December : ERN-Skin, training session in Ghent (Belgium). Organised by Pr Bert Callewaert, this session included a whole chapter dedicated to Cutis Laxa and all the scientific progress about it. See below “What’s new about Cutis Laxa». Other pathologies were also presented and patients representatives took part in a panel discussion « Patients’ burden : What healthcare […]
https://www.cutislaxa.org/wp-content/uploads/2020/06/Classification-tout-scaled.jpg13472560Marie-Claudehttp://www.cutislaxa.org/wp-content/uploads/2017/12/NEW-LOGO-CLI-4.pngMarie-Claude2020-06-01 18:30:262020-06-01 16:29:46ERN-SKIN TRAINING SESSION IN GHENT (Belgium)
ARTERYLASTIC : First real therapeutic hope for vascular issue in Dominant Cutis Laxa. ARTERYLASTIC derives from researches lead in Lyon (France) by Dr Romain Debret. Originating from the idea that if one can make prosthetics for a joint, maybe we could make prosthestics for a failing elastin, this project is funded by the French National […]
https://www.cutislaxa.org/wp-content/uploads/2019/01/Romain-Debret.jpg38632736Marie-Claudehttp://www.cutislaxa.org/wp-content/uploads/2017/12/NEW-LOGO-CLI-4.pngMarie-Claude2019-01-21 17:30:212019-01-21 17:30:21ARTERYLASTIC : First real therapeutic hope
ERN-SKIN TRAINING SESSION IN GHENT (Belgium)
/in Mutations, News, Research, Research - Medicine - Genetics, upcoming events /by Marie-Claude16th December : ERN-Skin, training session in Ghent (Belgium). Organised by Pr Bert Callewaert, this session included a whole chapter dedicated to Cutis Laxa and all the scientific progress about it. See below “What’s new about Cutis Laxa». Other pathologies were also presented and patients representatives took part in a panel discussion « Patients’ burden : What healthcare […]
ARTERYLASTIC : First real therapeutic hope
/in Mutations, News, Research, Research - Medicine - Genetics /by Marie-ClaudeARTERYLASTIC : First real therapeutic hope for vascular issue in Dominant Cutis Laxa. ARTERYLASTIC derives from researches lead in Lyon (France) by Dr Romain Debret. Originating from the idea that if one can make prosthetics for a joint, maybe we could make prosthestics for a failing elastin, this project is funded by the French National […]