They talk about us !!

EwenLife is dedicated to rare disorders. They made an interview with Marie-Claude Boiteux to publish videos talking about Cutis Laxa: what it is, the diagnosis, treatments, Cutis Laxa Internationale, etc

Once a week, on sunday, they will edit one video. And there are 8 videos. We are sorry there was no funds to get them subtittled in English we hope you can understand French.

Here is the teaser announcing the videos on their facebook page

They also talked about Cutis Laxa on their facebook page

Here is their Youtube channel where the videos are posted.

ENJOY watching them !

Watch Cecile’s interview

CLI VIDEO ON YOUTUBE

The French Skin Federation (FFP) has launched videos (in French) from its member organisations on youtube.

Listen to Marie-Claude Boiteux talking about Cutis Laxa Internationale

 

ZEYNEP’S STORY

Video on SHOW TV, on facebook, about Zeynep diagnosed with Cutis Laxa

(In Turkish)

2019.12.10

Watch the video :

2 Yaşındaki Zeynep "Yaşlanma Hastalığı" ile mücadele ediyor! #ZahideYetişle

2 Yaşındaki Zeynep "Yaşlanma Hastalığı" ile mücadele ediyor! #ZahideYetişle

Publiée par Show TV sur Mardi 10 décembre 2019