25 Years ago……

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A flagship show of the 1990s and 2000s, “Ça se discute” (“It’s debatible”) made its comeback sixteen years after the end of its broadcast on France 2. On RMC Life, channel 25 of the TNT, Estelle Denis succeeds Jean-Luc Delarue for shows that are as moving and captivating as ever.

On February 03, 2026, at the end of the show dedicated to eating disorders, Cécile Boiteux-Gueye was invited to talk about her journey since her participation in the show on September 12, 2001, when she was only 11 years old.

This very first program in which Cécile participated was the beginning of the great story of Cutis Laxa International because it is thanks to this program that other patients contacted us, that other programs took place with Cécile and that the patients, isolated, were able to get in touch with us.

There were 9 of us at the time, today there are more than 580.

Thank you “Ca se discute”

La Sorbonne University of the Patients

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Marie-Claude Boiteux was interviewed for the videos used during the Masterclass at the University for Patients in La Sorbonne (in French) (https://universitedespatients-sorbonne.fr/). The title of the presentation is “From loneliness to an International Organisation”.   see it  here (in French)

Dave Jacob’s interview on Grey Genetics Patient Stories Podcast

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Dave Jacob, founder fo ThinkGenetic, featured on the Grey Genetics Patient Stories Podcast on 30th January 2024.

He recounts his diagnostic journey, which ultimately led to a diagnosis of Cutis Laxa.

He shares how his personal experience as a rare disease patient inspired the inception of both ThinkGenetic Inc. and ThinkGenetic Foundation.

Give a listen

Visible Disorders of the Skin

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Cécile on the radio

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2023.04.19

Cécile was interviewed on the French Radio “Europe 1” in Olivier Delacroix’s broadcast “Free on-air : No judgement, no taboos, an open conversation” (in French)

https://www.europe1.fr/emissions/La-libre-antenne/cutis-laxa-cecile-est-enfermee-dans-un-corps-qui-parait-le-double-de-son-age-4178912

read this article (in French)

 

VISIBLE DISORDERS OF THE SKIN

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Podcast « Visible disorders of the skin » :

Visible disorders of the skin, whatever they are, draw gazes and induce various degrees of stigmatisation. This is the starting point of the VDS Programe with 3 big inititives : and epidemiology and prevalence  survey with 13138 respondants from 6 countries in late 2020, a Social Media Listening study thaht analysed over 20,000 messages posted on social medias during 3 years, and an application Patient Emotion App. to learn more about this study :    • Les Maladies Visi…  

Initiated by Patient Centricity Dpt at Pierre Fabre Laboratories.

Open up your ears and change your gaze on Visible Disorders of the Skin (in French)