Canal JDP
On 3rd December 2022, during the Dermatology Days of Paris (JDP),
organised by the French Society of Dermatology,
Marie-Claude Boiteux interviewed Pr Ludovic Martin for “Canal JDP”:
Journal Radiorg (Belgium)
28th February 2022 :
Grand Angle : Journal Radiorg (Belgium)
Testimony with Amber’s mother on the occasion of Rare Disease Day
La Gazette Bonsoise
Winter 2022 :
La Gazette Bonsoise : Associations’ Life : Cutis Laxa Special
In the Media
They talk about Cutis Laxa :
On 16th March, Chiara’s testimony (in French and in Italian) was posted on Facebook : https://www.facebook.com/photo?fbid=3509557279156318&set=pcb.3509561645822548
On 7th April, « Le Tribunal du net » edited an interview with Cécile (in French). Watch it again on our website https://www.cutislaxa.org/fr/quoi-de-neuf/ (videos) or on the “Tribunal du Net” page “https://www.facebook.com/letribunaldunet/videos/1782251148618795
In April and May, every week, Ewenlife published one of the 8 videos about Cutis Laxa. From diagnosis to medico-social care and treatments, all issues are tackled. You can watch them again (in French or with subtitles in your own language) on our website https://www.cutislaxa.org/fr/quoi-de-neuf/ (videos) or on Youtube : https://www.youtube.com/watch?v=XPI5X03FOEw&list=PLvUNl3idDQjTKEL_-tfQjZUE9ixRnH_aD
Cutis Laxa Videos ……… N°8 ……. last one
Here is the 8th …..and last…..of our videos
“Advice and support : “we are here !”” … this is my conclusion
and also how we, parents, can help our “different” children.
I hope you enjoyed those videos.
you can find the 8 videos on the playlist :
and don’t forget you can have subtittles in your own language
