Rare and I live with it

Cécile was interviewed by Handicap.fr for their new podcast

“Rare and I live with it”.

You can listen to it (in French):

on google

Or read the abstract:

here :

Handicap.fr – Podcast « Rare Disorder and I live with it » episode 9 : Cécile’s testimony

Read this article (in French)

 

Listen to the Podcast (in French)

Canal JDP

On 3rd December 2022, during the Dermatology Days of Paris (JDP),

organised by the French Society of Dermatology,

Marie-Claude Boiteux interviewed Pr Ludovic Martin for “Canal JDP”:

 

Weekly newspaper « Télé7jours » : Sophie Davant remembers the 10th Cutis Laxa patient discovered during Telethon 2001.

read this article (in French)

Public.fr : Sophie Davant, French journalist, tells how the Telethon 2001 supported the first research on CL

Read this article (in French)

 

Journal Radiorg (Belgium)

28th February  2022 :

Grand Angle : Journal Radiorg (Belgium)

Testimony with Amber’s mother on the occasion of Rare Disease Day

read the article (in French)

La Gazette Bonsoise

Winter 2022 :

La Gazette Bonsoise : Associations’ Life : Cutis Laxa Special

read the article (in French)

In the Media

They talk about Cutis Laxa :

On 16th March, Chiara’s testimony (in French and in Italian) was posted on Facebook : https://www.facebook.com/photo?fbid=3509557279156318&set=pcb.3509561645822548

 

On 7th April, « Le Tribunal du net » edited an interview with Cécile (in French).  Watch it again on our website https://www.cutislaxa.org/fr/quoi-de-neuf/ (videos) or on the “Tribunal du Net” page “https://www.facebook.com/letribunaldunet/videos/1782251148618795

 

In April and May, every week, Ewenlife published one of the 8 videos about Cutis Laxa. From diagnosis to medico-social care and treatments, all issues are tackled. You can watch them again (in French or with subtitles in your own language) on our website https://www.cutislaxa.org/fr/quoi-de-neuf/ (videos) or on Youtube :  https://www.youtube.com/watch?v=XPI5X03FOEw&list=PLvUNl3idDQjTKEL_-tfQjZUE9ixRnH_aD