Canal JDP
On 3rd December 2022, during the Dermatology Days of Paris (JDP),
organised by the French Society of Dermatology,
Marie-Claude Boiteux interviewed Pr Ludovic Martin for “Canal JDP”:
In the Media
1st March 2022 :
Le Monde – Tribune Grand Angle :
What about recognition for rare disorders representatives ?
April 2022 :
Le Trombinoscope :
Calling for recognition of rare disorders representatives
Journal Radiorg (Belgium)
28th February 2022 :
Grand Angle : Journal Radiorg (Belgium)
Testimony with Amber’s mother on the occasion of Rare Disease Day
La Gazette Bonsoise
Winter 2022 :
La Gazette Bonsoise : Associations’ Life : Cutis Laxa Special
IN THE MEDIA
6th October : Le Dauphiné – Bons en Chablais :
On the occasion of « Pink October » and in partnership with the local council of Bons en Chablais, Cutis Laxa Internationale held an information stall and sold various items.
11/10/21 Le dauphiné – Bons en Chablais : Pink and Blue Walk
The health organisations of the town were associated with the Blue Walk dedicated to elderly people and with Pink October dedicated to Breast Cancer.
Autumn 2021 : La Gazette Bonsoise :
Report of all the events organised on the occasion of « Pink October ».
In the Media
They talk about Cutis Laxa :
On 16th March, Chiara’s testimony (in French and in Italian) was posted on Facebook : https://www.facebook.com/photo?fbid=3509557279156318&set=pcb.3509561645822548
On 7th April, « Le Tribunal du net » edited an interview with Cécile (in French). Watch it again on our website https://www.cutislaxa.org/fr/quoi-de-neuf/ (videos) or on the “Tribunal du Net” page “https://www.facebook.com/letribunaldunet/videos/1782251148618795
In April and May, every week, Ewenlife published one of the 8 videos about Cutis Laxa. From diagnosis to medico-social care and treatments, all issues are tackled. You can watch them again (in French or with subtitles in your own language) on our website https://www.cutislaxa.org/fr/quoi-de-neuf/ (videos) or on Youtube : https://www.youtube.com/watch?v=XPI5X03FOEw&list=PLvUNl3idDQjTKEL_-tfQjZUE9ixRnH_aD
Cutis Laxa Videos ……… N°8 ……. last one
Here is the 8th …..and last…..of our videos
“Advice and support : “we are here !”” … this is my conclusion
and also how we, parents, can help our “different” children.
I hope you enjoyed those videos.
you can find the 8 videos on the playlist :
and don’t forget you can have subtittles in your own language
