Lignes d’assistance dans le monde
| Lignes Téléphoniques d’aide pour les maladies rares dans le monde | ||
| Pays | Organisation | Numéro d’appel & autres moyens de contact |
| Canada | Rare Disease Information and Resource Centre | +385 12441393 – info@rqmo.org www.rqmo.org/rare-disease-information-and-resource-centre/ |
| Croatie * | Croatian Help Line for Rare Diseases | +385 12441393 – rijetke.bolesti@gmail.com www.rijetke-bolesti.hr/rare-diseases-croatia Facebook group |
| Danemark * | Rare Diseases Denmark | +45 33140010 – helpline@sjaeldnediagnoser.dk sjaeldnediagnoser.dk/helpline/ |
| France * | Maladies Rares Info Services (MRIS) | + 33 156538136 – info-services@maladiesrares.org www.maladiesraresinfo.org |
| Allemagne | ACHSE Betroffenen- und Angehörigenberatung | +49 3033007080 – www.achse-online.de |
| Hongrie * | Lifebelt | +36 617904533 – mentoov@rirosz.hu – mentoov.rirosz.hu/ |
| Irlande * | National Rare Diseases Office (NRDO) | +353 1800 24 03 65 or + 353 18545065 rare.diseases@mater.ie – www.hse.ie/eng/services |
| Italie * | Università di Padova, Coordinating Centre for Rare Diseases, Veneto Region | + 39 049 82 15 700 – malattierare@pediatria.unipd.it |
| Italie * | Telefono Verde Malattie Rare | +39 800896949 – https://www.iss.it/?p=171 |
| Italy * | Centro di ascolto malattie rare | +39 800 880101 – http://www.regione.toscana.it/-/centro-di-ascolto-per-le-malattie-rare |
| Italie * | Centro di ascolto per le malattie rare del Piemonte e della Valle d’Aosta | +39346.1059486 +39339.5203554 – segreteria@a-rare.it |
| Mexique | AcceSalud | accesalud@femexer.org |
| Norvège | Norwegian National Advisory Unit on Rare Disorders Oslo University Hospital | +47 23 02 69 75 – liegen@ous-hf.no Helsenorge.no/Sjeldnediagnoser |
| Portugal * | Linha Rara | +351 300505700 – info@rarissimas.pt |
| Roumanie * | Romanian National Alliance for Rare Disease (NoRo Help Line) | +40 260611214 – office@apwromania.ro |
| Roumanie * | Romanian Myasthenia Gravis Info Centre | +40 744704399 – asociatia.miastenia@gmail.com |
| Serbie * | NORBS | +381 800333103 – office@norbs.rs – www.norbs.rs/ |
| Espagne * | SIO Feder | +34 918221725 – sio@enfermedades-raras.org |
| Suisse * | Infos Maladies Rares | +41 848314372 – contact@infomaladiesrares.ch www.info-maladies-rares.ch/ |
| Suisse * | Seltene Krankheiten | +41 442663535 – selten@kispi.uzh.ch – www.kispi.uzh.ch |
| USA | GARD Genetic and Rare Diseases Information Center | +1 8882052311 |
| Monde Entier | ThinkGenetic | https://www.thinkgenetic.com/
medical advice from Genetic counselors : https://www.thinkgenetic.com/contact-counselor |