Youtube with “Tibo InShape”

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New video

Cécile was interviewed by #Tibo InShape on his youtube page.

A very serious, but joyful, moment that also allowed us to open an online funding page

 https://www.leetchi.com/c/cutis-laxa-international

 

Rare and I live with it

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Cécile was interviewed by Handicap.fr for their new podcast

“Rare and I live with it”.

You can listen to it (in French):

on google

Or read the abstract:

here :

Handicap.fr – Podcast « Rare Disorder and I live with it » episode 9 : Cécile’s testimony

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Read this article (in French)

 

Listen to the Podcast (in French)

Canal JDP

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On 3rd December 2022, during the Dermatology Days of Paris (JDP),

organised by the French Society of Dermatology,

Marie-Claude Boiteux interviewed Pr Ludovic Martin for “Canal JDP”:

 

Cutis Laxa Videos ……… N°8 ……. last one

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Here is the 8th …..and last…..of our videos

“Advice and support : “we are here !”” …  this is my conclusion

and also how we, parents, can help our “different” children.

I hope you enjoyed those videos.

you can find the 8 videos on the playlist :

 

and don’t forget you can have subtittles in your own language