Its new members : Joanna, Ayse and her two brothers, Delphine, Elizabeth, Adar, Aakshay, Fabricio, Solange, Andrea, Zahid, Dilsa, Jannae & Julia, Fatiha and her sister, MaryAnn come from Poland, Turkey, Canada, Saoudy Arabia , USA, Israel, Brazil, Italy, Colombia, France.
All around the world, 479 patients are now part of our Cutis Laxa patients’ community.
On 27th May I heard with deep sorrow about Maddie’s passing. She was 19 months old. I had talked a lot with her mother during her long stay in hospital. Rest in peace sweet angel, your pain has disappeared.