Workshop with the National Service for Solidarity and Autonomy and the French Federation for Skin on Support Files given to the Local Houses for Disabled People for patients to assert their rights.
Official hearing by the National Conference for Health on the occasion of the 20th anniversary of Democracy in Health. A lot still has to be done for small organisations such as ours to continue existing and working for improvements in patients’ quality of life.
9th February :
Associations member of FIMARAD (French Network for Rare Skin Disorders) worked on the concept of Expert by Expertise, where the Patient is rightly considered an Expert.