14thJanuary : Annual Meeting
10th March: Scientific Day
27th September : Webinar of the Thematic group concerned with Cutis Laxa
18th January : last meeting to establish the criteria on which ERNs will be re-assessed and 15th June : final document.
21st January meeting of the Organising Committee and 31st January Good Practice webinar
27th to 30thJune European Conference on Rare Disorders
18th May Annual General Meeting