CUTIS LAXA PATIENT JOURNEYS

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NEW PATIENT JOURNEYS

We have developed 2 patient journeys based on testimonies from our members on what it is like to live with a Cutis Laxa.

Those documents aim to be a tool for health care professionals and patients during a consultation to help them agree on the best possible care on a long term basis.

The Patient Journeys have been updated recently to better fit with today’s knowledge on Cutis Laxa.

CUTIS LAXA WITH ARTERIES AND LUNGS SYMPTOMS

CUTIS LAXA WITH NEURO AND SKELETON SYMPTOMS