New Patients, New Families

Sara and her sister Abeer, Bennett, Tucker, Eileen, Youssef, Ella, Catarina, Rory, Malak, Carolina and Gabriel joined us over the last six month. Including them, there are now  581 patients worldwide who our Big Cutis Laxa Family helps, supports and accompanies in their search for answers to their questions.

 

We also sometimes know about other patients, especially when they take part in reports posted on social media. Thanks to BBC Africa, this is how we knew about an African family. Unfortunately, despite our approaches to the channel, the doctors interviewed and the directors of this report we couldn’t contact them or, at least, let them know we are here.  I am so sorry about that.