{"id":19872,"date":"2026-07-15T16:13:49","date_gmt":"2026-07-15T14:13:49","guid":{"rendered":"https:\/\/www.cutislaxa.org\/?p=19872"},"modified":"2026-10-06T16:22:11","modified_gmt":"2026-10-06T14:22:11","slug":"3e-congres-mondial-des-maladies-rares-de-la-peau-wcrsd","status":"publish","type":"post","link":"https:\/\/www.cutislaxa.org\/fr\/3e-congres-mondial-des-maladies-rares-de-la-peau-wcrsd\/","title":{"rendered":"3e Congr\u00e8s Mondial des Maladies Rares de la Peau (WCRSD)"},"content":{"rendered":"

1st-3rd July 2026:<\/em><\/strong><\/p>\n

\"\"<\/p>\n

Le 3e<\/sup> Congr\u00e8s Mondial des Maladies Rares de la Peau (WCRSD) s\u2019est tenu au Palais des Congr\u00e8s de Versailles. Pour cette 3e<\/sup> \u00e9dition, une session pl\u00e9ni\u00e8re \u00e9tait enti\u00e8rement d\u00e9di\u00e9e aux patients. Membres du comit\u00e9 d\u2019organisation, nous avions d\u00e9cid\u00e9 de mettre en avant le travail que font les associations. Le th\u00e8me de cette session \u00e9tait la sant\u00e9 mentale dans les maladies rares dermatologiques.<\/p>\n

\"\"<\/p>\n

\"\"\u00a06 orateurs ont pr\u00e9sent\u00e9 les publications et les travaux de leurs associations :<\/p>\n

La sant\u00e9 mentale dans les maladies rares ;<\/p>\n

PRIDD : valider l\u2019impact de la vie avec une maladie rare de la peau sur la sant\u00e9 mentale ;<\/p>\n

L\u2019\u00e9tat psychosocial de solitude, l\u2019isolation sociale et la d\u00e9tresse psychologique chez patients atteints d\u2019albinisme ;<\/p>\n

Recherche qualitative : l\u2019impact profond de la vie avec une ichtyose sur la sant\u00e9 mentale ;<\/p>\n

L\u2019interaction des facteurs psychosociaux et du bien-\u00eatre chez les femmes ayant un enfant malade : l\u2019impact du niveau de d\u00e9pendance de l\u2019enfant ;<\/p>\n

Prendre en charge les besoins en sant\u00e9 mentale des patients atteints d\u2019une maladie rare de la peau : le R\u00e9seau de soutien du Psoriasis Pustuleux G\u00e9n\u00e9ralis\u00e9.<\/p>\n

Une session tr\u00e8s riche qui a beaucoup int\u00e9ress\u00e9 l\u2019auditoire.<\/p>\n

Un congr\u00e8s toujours aussi int\u00e9ressant\u00a0: des moments d\u2019\u00e9changes avec les \u00ab\u00a0coll\u00e8gues\u00a0\u00bb associatifs,<\/p>\n

\"\" \"\"<\/p>\n

\"\" <\/p>\n

\"\"<\/p>\n

des pr\u00e9sentations enrichissantes,<\/p>\n

\"\"<\/p>\n

des stands pour nous faire conna\u00eetre,<\/p>\n

\"\"<\/p>\n

un poster,<\/p>\n

\"\"<\/p>\n

une session d\u00e9di\u00e9e \u00e0 la Cutis Laxa<\/p>\n

\"\" \"\"<\/p>\n

et une soir\u00e9e magnifique dans les \u00e9curies du ch\u00e2teau.<\/p>\n

\"\" \"\"<\/p>\n

L\u2019occasion \u00e9galement de retrouver les membres de Globalskin pour une session de travail sur les maladies rares dermatologiques.<\/p>\n

\"\" \"\"<\/p>\n

\"\"<\/p>\n

\n","protected":false},"excerpt":{"rendered":"

1st-3rd July 2026: Le 3e Congr\u00e8s Mondial des Maladies Rares de la Peau (WCRSD) s\u2019est tenu au Palais des Congr\u00e8s de Versailles. Pour cette 3e \u00e9dition, une session pl\u00e9ni\u00e8re \u00e9tait enti\u00e8rement d\u00e9di\u00e9e aux patients. Membres du comit\u00e9 d\u2019organisation, nous avions d\u00e9cid\u00e9 de mettre en avant le travail que font les associations. Le th\u00e8me de cette […]<\/p>\n","protected":false},"author":2,"featured_media":19834,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[68,67,61,66,64],"tags":[],"class_list":["post-19872","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-evenements","category-photos-fr","category-quoi-de-neuf","category-recherche-medecine-genetique","category-rencontres-evenements-et-manifestations"],"yoast_head":"\n3e Congr\u00e8s Mondial des Maladies Rares de la Peau (WCRSD) - CUTIS LAXA INTERNATIONALE<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.cutislaxa.org\/fr\/3e-congres-mondial-des-maladies-rares-de-la-peau-wcrsd\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"3e Congr\u00e8s Mondial des Maladies Rares de la Peau (WCRSD) - CUTIS LAXA INTERNATIONALE\" \/>\n<meta property=\"og:description\" content=\"1st-3rd July 2026: Le 3e Congr\u00e8s Mondial des Maladies Rares de la Peau (WCRSD) s\u2019est tenu au Palais des Congr\u00e8s de Versailles. Pour cette 3e \u00e9dition, une session pl\u00e9ni\u00e8re \u00e9tait enti\u00e8rement d\u00e9di\u00e9e aux patients. Membres du comit\u00e9 d\u2019organisation, nous avions d\u00e9cid\u00e9 de mettre en avant le travail que font les associations. 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