{"id":17653,"date":"2025-07-03T16:44:39","date_gmt":"2025-07-03T14:44:39","guid":{"rendered":"https:\/\/www.cutislaxa.org\/?p=17653"},"modified":"2025-09-03T16:46:18","modified_gmt":"2025-09-03T14:46:18","slug":"handicaps-et-barrieres-des-maladies-rares-de-la-peau","status":"publish","type":"post","link":"https:\/\/www.cutislaxa.org\/fr\/handicaps-et-barrieres-des-maladies-rares-de-la-peau\/","title":{"rendered":"Handicaps et Barri\u00e8res\u00a0des maladies rares de la peau"},"content":{"rendered":"<p><strong><u>Reconnaitre les handicaps et les barri\u00e8res\u00a0des maladies rares de la peau : les chiffres-clefs de l\u2019enqu\u00eate Rare barometer\u00a0<\/u><\/strong><\/p>\n<ul>\n<li>7 personnes sur 10 ayant une maladie rare dermatologique vivent avec des handicaps\u00a0;<\/li>\n<li>66% des r\u00e9pondants ont des difficult\u00e9s dans au moins deux des activit\u00e9s suivantes\u00a0: Voir, Entendre, Marcher\/monter des marches, se souvenir\/se concentrer, Prendre soin de soi-m\u00eame, Communiquer\u00a0;<\/li>\n<li>59% trouvent difficile ou tr\u00e8s difficile d\u2019obtenir des soutiens publics tels que\u00a0: une aide \u00e0 domicile, une aide financi\u00e8re, une technologie d\u2019assistance, des aides \u00e0 la mobilit\u00e9 ou d\u2019autres soutiens\u00a0;<\/li>\n<li>52% font \u00e9tat de discrimination li\u00e9e \u00e0 la maladie rare de la peau ou au handicap dans le syst\u00e8me de soins, dans l\u2019emploi, dans l\u2019\u00e9ducation, dans le logement, dans les lieux publics et autres\u00a0;<\/li>\n<li>14% des personnes vivant avec une maladie rare dermatologique sont sans emploi (en comparaison, le taux de personnes sans emploi \u00e9tait de 6,1% dans la population g\u00e9n\u00e9rale en Europe en 2023)<\/li>\n<\/ul>\n","protected":false},"excerpt":{"rendered":"<p>Reconnaitre les handicaps et les barri\u00e8res\u00a0des maladies rares de la peau : les chiffres-clefs de l\u2019enqu\u00eate Rare barometer\u00a0 7 personnes sur 10 ayant une maladie rare dermatologique vivent avec des handicaps\u00a0; 66% des r\u00e9pondants ont des difficult\u00e9s dans au moins deux des activit\u00e9s suivantes\u00a0: Voir, Entendre, Marcher\/monter des marches, se souvenir\/se concentrer, Prendre soin de [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":8053,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[63,61],"tags":[],"class_list":["post-17653","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-legislation-society-fr","category-quoi-de-neuf"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.0 - 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