{"id":17415,"date":"2025-05-21T16:10:13","date_gmt":"2025-05-21T14:10:13","guid":{"rendered":"https:\/\/www.cutislaxa.org\/?p=17415"},"modified":"2025-09-02T16:20:20","modified_gmt":"2025-09-02T14:20:20","slug":"2-resolutions-a-lassemblee-mondiale-de-la-sante","status":"publish","type":"post","link":"https:\/\/www.cutislaxa.org\/fr\/2-resolutions-a-lassemblee-mondiale-de-la-sante\/","title":{"rendered":"2 RESOLUTIONS A L’ASSEMBLEE MONDIALE DE LA SANTE"},"content":{"rendered":"

A GENEVE<\/p>\n

21-22 <\/em>Mai 2025<\/em>\u00a0:<\/p>\n

Marie-Claude Boiteux \u00e9tait l\u00e0 tpour soutenir deux importantes r\u00e9solutions pr\u00e9sent\u00e9es au vote de l\u2019Assembl\u00e9e Mondiale de la Sant\u00e9.<\/p>\n

La premi\u00e8re r\u00e9solution, port\u00e9e par Globalskin,<\/strong> demande que les Maladies\u00a0Dermatologiques<\/strong> soient inscrites comme priorit\u00e9 mondiale de sant\u00e9.<\/p>\n

\"\"<\/a><\/p>\n

La seconde, port\u00e9e par Maladies Rares Internationales (RDI)<\/strong> demande quant \u00e0 elle que les Maladies Rares<\/strong> soient inscrites comme priorit\u00e9 mondiale de sant\u00e9.<\/p>\n

\"\"<\/a> \"\"<\/a><\/p>\n

La Cutis Laxa est une maladie rare et dermatologique. Ces deux r\u00e9solutions, vot\u00e9es \u00e0 l\u2019unanimit\u00e9 par l\u2019Assembl\u00e9e Mondiale de la Sant\u00e9 dans sa s\u00e9ance du 24 Mai 2025, sont donc essentielles pour nos malades \u00e0 travers le monde.<\/p>\n

Elles ouvrent la voie \u00e0 des plans d’action mondiaux ax\u00e9s sur la pr\u00e9vention, le d\u00e9pistage pr\u00e9coce, le traitement efficace et les soins de longue dur\u00e9e pour toutes les personnes atteintes d’affections cutan\u00e9es rares dans le monde.<\/p>\n

\"\"<\/a> \"\"<\/a><\/p>\n

Elles visent \u00e0 favoriser un acc\u00e8s \u00e9quitable \u00e0 des services abordables et de qualit\u00e9 en int\u00e9grant la sant\u00e9 cutan\u00e9e dans les syst\u00e8mes de sant\u00e9 plus larges.<\/p>\n

Les professionnels de sant\u00e9 n’ont pas \u00e9t\u00e9 oubli\u00e9s, car les r\u00e9solutions appellent \u00e9galement \u00e0 promouvoir la recherche sur les maladies cutan\u00e9es en collaboration avec les institutions universitaires et de recherche, et \u00e0 am\u00e9liorer la collecte de donn\u00e9es, la recherche et la surveillance des maladies rares afin d’am\u00e9liorer la compr\u00e9hension, l’identification pr\u00e9coce rapide et confirm\u00e9e, y compris le d\u00e9pistage, le diagnostic et les options th\u00e9rapeutiques.<\/p>\n

\"\"<\/a><\/p>\n

Il nous faut maintenant poursuivre le travail pour que ces Plans d\u2019Action Mondiaux voient le jour et r\u00e9pondent aux besoins de tous nos malades \u00e0 travers le monde<\/p>\n","protected":false},"excerpt":{"rendered":"

A GENEVE 21-22 Mai 2025\u00a0: Marie-Claude Boiteux \u00e9tait l\u00e0 tpour soutenir deux importantes r\u00e9solutions pr\u00e9sent\u00e9es au vote de l\u2019Assembl\u00e9e Mondiale de la Sant\u00e9. La premi\u00e8re r\u00e9solution, port\u00e9e par Globalskin, demande que les Maladies\u00a0Dermatologiques soient inscrites comme priorit\u00e9 mondiale de sant\u00e9. La seconde, port\u00e9e par Maladies Rares Internationales (RDI) demande quant \u00e0 elle que les Maladies […]<\/p>\n","protected":false},"author":2,"featured_media":17380,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[68,63,67,61],"tags":[],"class_list":["post-17415","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-evenements","category-legislation-society-fr","category-photos-fr","category-quoi-de-neuf"],"yoast_head":"\n2 RESOLUTIONS A L'ASSEMBLEE MONDIALE DE LA SANTE - CUTIS LAXA INTERNATIONALE<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.cutislaxa.org\/fr\/2-resolutions-a-lassemblee-mondiale-de-la-sante\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"2 RESOLUTIONS A L'ASSEMBLEE MONDIALE DE LA SANTE - CUTIS LAXA INTERNATIONALE\" \/>\n<meta property=\"og:description\" content=\"A GENEVE 21-22 Mai 2025\u00a0: Marie-Claude Boiteux \u00e9tait l\u00e0 tpour soutenir deux importantes r\u00e9solutions pr\u00e9sent\u00e9es au vote de l\u2019Assembl\u00e9e Mondiale de la Sant\u00e9. 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