{"id":16581,"date":"2024-05-31T17:40:32","date_gmt":"2024-05-31T15:40:32","guid":{"rendered":"https:\/\/www.cutislaxa.org\/?p=16581"},"modified":"2024-09-18T17:47:54","modified_gmt":"2024-09-18T15:47:54","slug":"porter-la-voix-des-malades-de-la-peau-jusqua-loms","status":"publish","type":"post","link":"https:\/\/www.cutislaxa.org\/fr\/porter-la-voix-des-malades-de-la-peau-jusqua-loms\/","title":{"rendered":"Porter la voix des malades de la Peau jusqu’\u00e0 l’OMS"},"content":{"rendered":"

C\u2019est \u00e0 Gen\u00e8ve<\/strong>,<\/p>\n

\u00e0 l\u2019occasion de l\u2019Assembl\u00e9e Mondiale de la Sant\u00e9, le 29 Mai<\/strong>,<\/p>\n

qu\u2019\u00e9taient organis\u00e9s deux \u00e9v\u00e8nements pour porter la voix des maladies rares et dermatologiques au sein de l\u2019OMS<\/p>\n

\"\" \"\"<\/strong><\/p>\n

Globalskin (IADPO)<\/strong> avait pour th\u00e8me \u00ab\u00a0Les maladies de la Peau, une priorit\u00e9 mondiale de sant\u00e9 publique \u2013 Pas de Couverture Sant\u00e9 Universelle sans la sant\u00e9 de la peau\u00a0\u00bb.<\/p>\n

\"\"<\/p>\n

\"\"<\/p>\n

Quant \u00e0 Maladies Rares International (RDI),<\/strong> c\u2019est l\u2019importance de l\u2019investissement dans les maladies rares qui \u00e9tait au c\u0153ur des discussions avec l\u2019objectif final de l\u2019\u00e9dition d\u2019une r\u00e9solution sur les Maladies Rares par l\u2019Assembl\u00e9e Mondiale de la Sant\u00e9 en 2025.Une premi\u00e8re \u00e9tape a \u00e9t\u00e9 franchie avec l\u2019acceptation officielle de RDI comme interlocuteur de l\u2019Organisation Mondiale de la Sant\u00e9 (OMS).<\/p>\n","protected":false},"excerpt":{"rendered":"

C\u2019est \u00e0 Gen\u00e8ve, \u00e0 l\u2019occasion de l\u2019Assembl\u00e9e Mondiale de la Sant\u00e9, le 29 Mai, qu\u2019\u00e9taient organis\u00e9s deux \u00e9v\u00e8nements pour porter la voix des maladies rares et dermatologiques au sein de l\u2019OMS Globalskin (IADPO) avait pour th\u00e8me \u00ab\u00a0Les maladies de la Peau, une priorit\u00e9 mondiale de sant\u00e9 publique \u2013 Pas de Couverture Sant\u00e9 Universelle sans la […]<\/p>\n","protected":false},"author":2,"featured_media":16569,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[63,67,61,64],"tags":[],"class_list":["post-16581","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-legislation-society-fr","category-photos-fr","category-quoi-de-neuf","category-rencontres-evenements-et-manifestations"],"yoast_head":"\nPorter la voix des malades de la Peau jusqu'\u00e0 l'OMS - CUTIS LAXA INTERNATIONALE<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.cutislaxa.org\/fr\/porter-la-voix-des-malades-de-la-peau-jusqua-loms\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Porter la voix des malades de la Peau jusqu'\u00e0 l'OMS - CUTIS LAXA INTERNATIONALE\" \/>\n<meta property=\"og:description\" content=\"C\u2019est \u00e0 Gen\u00e8ve, \u00e0 l\u2019occasion de l\u2019Assembl\u00e9e Mondiale de la Sant\u00e9, le 29 Mai, qu\u2019\u00e9taient organis\u00e9s deux \u00e9v\u00e8nements pour porter la voix des maladies rares et dermatologiques au sein de l\u2019OMS Globalskin (IADPO) avait pour th\u00e8me \u00ab\u00a0Les maladies de la Peau, une priorit\u00e9 mondiale de sant\u00e9 publique \u2013 Pas de Couverture Sant\u00e9 Universelle sans la […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.cutislaxa.org\/fr\/porter-la-voix-des-malades-de-la-peau-jusqua-loms\/\" \/>\n<meta property=\"og:site_name\" content=\"CUTIS LAXA INTERNATIONALE\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/CutisLaxaAssociation\/\" \/>\n<meta property=\"article:published_time\" content=\"2024-05-31T15:40:32+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-09-18T15:47:54+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2024\/09\/447056884_858299853007881_5799537356715025279_n.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1966\" \/>\n\t<meta property=\"og:image:height\" content=\"1077\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Marie-Claude\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Marie-Claude\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.cutislaxa.org\/fr\/porter-la-voix-des-malades-de-la-peau-jusqua-loms\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.cutislaxa.org\/fr\/porter-la-voix-des-malades-de-la-peau-jusqua-loms\/\"},\"author\":{\"name\":\"Marie-Claude\",\"@id\":\"https:\/\/www.cutislaxa.org\/#\/schema\/person\/2b5e58dca5a6f412607f985f2823d045\"},\"headline\":\"Porter la voix des malades de la Peau jusqu’\u00e0 l’OMS\",\"datePublished\":\"2024-05-31T15:40:32+00:00\",\"dateModified\":\"2024-09-18T15:47:54+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.cutislaxa.org\/fr\/porter-la-voix-des-malades-de-la-peau-jusqua-loms\/\"},\"wordCount\":145,\"publisher\":{\"@id\":\"https:\/\/www.cutislaxa.org\/#organization\"},\"articleSection\":[\"L\u00e9gislation - 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