{"id":15713,"date":"2023-11-17T16:43:12","date_gmt":"2023-11-17T15:43:12","guid":{"rendered":"https:\/\/www.cutislaxa.org\/?p=15713"},"modified":"2024-02-16T16:48:24","modified_gmt":"2024-02-16T15:48:24","slug":"8eme-journee-nationale-de-la-filiere-fimarad","status":"publish","type":"post","link":"https:\/\/www.cutislaxa.org\/fr\/8eme-journee-nationale-de-la-filiere-fimarad\/","title":{"rendered":"8\u00e8me Journ\u00e9e Nationale de la Fili\u00e8re FIMARAD"},"content":{"rendered":"

\"\"<\/p>\n

17 Novembre 2023\u00a0: \u00a0<\/em><\/p>\n

Dans le magnifique cadre de la Maison de l\u2019Am\u00e9rique Latine, \u00e0 Paris, la fili\u00e8re FIMARAD organisait<\/p>\n

sa 8\u00e8me Journ\u00e9e Nationale.<\/p>\n

\"\"<\/p>\n

Lors de leur intervention, les repr\u00e9sentants des malades ont fait part de leurs inqui\u00e9tudes quant \u00e0 la p\u00e9rennit\u00e9 des associations de malades. Ces derni\u00e8res, en particulier les petites comme CLI, bataillent pour mener \u00e0 bien leurs projets en raison du manque de b\u00e9n\u00e9voles et du manque de financement.<\/p>\n

\"\"<\/p>\n

L\u2019inexistance de finances de l\u2019\u00e9tat alors qu\u2019il est demand\u00e9 de plus en plus de participation des associations dans les activit\u00e9s de sant\u00e9 est un sujet crucial.<\/p>\n","protected":false},"excerpt":{"rendered":"

17 Novembre 2023\u00a0: \u00a0 Dans le magnifique cadre de la Maison de l\u2019Am\u00e9rique Latine, \u00e0 Paris, la fili\u00e8re FIMARAD organisait sa 8\u00e8me Journ\u00e9e Nationale. Lors de leur intervention, les repr\u00e9sentants des malades ont fait part de leurs inqui\u00e9tudes quant \u00e0 la p\u00e9rennit\u00e9 des associations de malades. Ces derni\u00e8res, en particulier les petites comme CLI, bataillent […]<\/p>\n","protected":false},"author":2,"featured_media":7492,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[67,61,66,64],"tags":[],"class_list":["post-15713","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-photos-fr","category-quoi-de-neuf","category-recherche-medecine-genetique","category-rencontres-evenements-et-manifestations"],"yoast_head":"\n8\u00e8me Journ\u00e9e Nationale de la Fili\u00e8re FIMARAD - CUTIS LAXA INTERNATIONALE<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.cutislaxa.org\/fr\/8eme-journee-nationale-de-la-filiere-fimarad\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"8\u00e8me Journ\u00e9e Nationale de la Fili\u00e8re FIMARAD - CUTIS LAXA INTERNATIONALE\" \/>\n<meta property=\"og:description\" content=\"17 Novembre 2023\u00a0: \u00a0 Dans le magnifique cadre de la Maison de l\u2019Am\u00e9rique Latine, \u00e0 Paris, la fili\u00e8re FIMARAD organisait sa 8\u00e8me Journ\u00e9e Nationale. Lors de leur intervention, les repr\u00e9sentants des malades ont fait part de leurs inqui\u00e9tudes quant \u00e0 la p\u00e9rennit\u00e9 des associations de malades. 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