{"id":13678,"date":"2022-12-27T15:10:16","date_gmt":"2022-12-27T14:10:16","guid":{"rendered":"https:\/\/www.cutislaxa.org\/?p=13678"},"modified":"2023-01-09T15:29:12","modified_gmt":"2023-01-09T14:29:12","slug":"13-et-14-septembre-journee-medicale","status":"publish","type":"post","link":"https:\/\/www.cutislaxa.org\/fr\/13-et-14-septembre-journee-medicale\/","title":{"rendered":"13 et 14 Septembre Journ\u00e9e M\u00e9dicale"},"content":{"rendered":"

\"\" \"\" \"\"<\/p>\n

Le Pr Bert Callewaert, le Dr Karolien Aelbrecht, Mme Deborah Wille et toute l\u2019\u00e9quipe du service de m\u00e9decine g\u00e9n\u00e9tique de l\u2019H\u00f4pital Universitaire de Gand nous ont accueillis pour permettre aux patients d\u2019\u00eatre vus en consultations : G\u00e9n\u00e9tique, Cardiologie et Ophtalmologie. Ils ont \u00e9galement eu des pr\u00e9l\u00e8vements sanguins ainsi qu\u2019une biopsie.<\/p>\n

\"\"<\/p>\n

Tous ces examens avaient pour but d\u2019\u00e9valuer les cons\u00e9quences de la Cutis Laxa sur les organes examin\u00e9s, confirmer le diagnostic pos\u00e9 initialement, permettre le diagnostic mol\u00e9culaire lorsqu\u2019il s\u2019est av\u00e9r\u00e9 n\u00e9cessaire, informer les malades du suivi m\u00e9dical que leur \u00e9tat n\u00e9cessite, mais \u00e9galement inclure tous ceux qui le souhaitaient dans le programme de recherche men\u00e9 par le Pr Callewaert.<\/p>\n

\u00a0\u00a0\u00a0 \u00a0\u00a0 \"\"<\/p>\n

Plusieurs salles du service avaient \u00e9t\u00e9 mobilis\u00e9es, tant pour les consultations en elles-m\u00eames que pour offrir une salle d\u2019attente et de repos pour les malades et pour que les enfants malades et leurs fratries aient un espace de jeu.<\/p>\n

\"\" \"\"<\/p>\n

\"\"<\/p>\n

 <\/p>\n

Nous tenons \u00e0 remercier tr\u00e8s chaleureusement le Pr Callewaert et son \u00e9quipe pour leur \u00e9coute, leur patience, leur implication et leur grande expertise de la Cutis Laxa.<\/p>\n

\"\"<\/p>\n

Families’ thanks<\/p>\n

\u00ab\u00a0Bravo et merci \u00e0 l’\u00e9quipe de Bert, qui ont \u00e9t\u00e9 adorables et p\u00e9dagogues, en plus de leur expertise m\u00e9dicale. Nous nous sommes sentis entre de bonnes mains<\/em>.\u00a0\u00bb<\/em><\/span><\/p>\n

\u00ab\u00a0Les activit\u00e9s pour les enfants ont \u00e9t\u00e9 g\u00e9niales, jeux, coloriages, voitures, \u00e0 l’h\u00f4pital et au symposium.\u00a0\u00bb<\/span><\/em><\/p>\n

Nous remercions \u00e9galement l\u2019H\u00f4pital Universitaire de Gand pour les d\u00e9jeuners offerts.<\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

Le Pr Bert Callewaert, le Dr Karolien Aelbrecht, Mme Deborah Wille et toute l\u2019\u00e9quipe du service de m\u00e9decine g\u00e9n\u00e9tique de l\u2019H\u00f4pital Universitaire de Gand nous ont accueillis pour permettre aux patients d\u2019\u00eatre vus en consultations : G\u00e9n\u00e9tique, Cardiologie et Ophtalmologie. Ils ont \u00e9galement eu des pr\u00e9l\u00e8vements sanguins ainsi qu\u2019une biopsie. Tous ces examens avaient pour […]<\/p>\n","protected":false},"author":2,"featured_media":13673,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[67,61,60,66,64],"tags":[],"class_list":["post-13678","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-photos-fr","category-quoi-de-neuf","category-recherche","category-recherche-medecine-genetique","category-rencontres-evenements-et-manifestations"],"yoast_head":"\n13 et 14 Septembre Journ\u00e9e M\u00e9dicale - CUTIS LAXA INTERNATIONALE<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.cutislaxa.org\/13th-and-14th-september-clinics\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"13 et 14 Septembre Journ\u00e9e M\u00e9dicale - CUTIS LAXA INTERNATIONALE\" \/>\n<meta property=\"og:description\" content=\"Le Pr Bert Callewaert, le Dr Karolien Aelbrecht, Mme Deborah Wille et toute l\u2019\u00e9quipe du service de m\u00e9decine g\u00e9n\u00e9tique de l\u2019H\u00f4pital Universitaire de Gand nous ont accueillis pour permettre aux patients d\u2019\u00eatre vus en consultations : G\u00e9n\u00e9tique, Cardiologie et Ophtalmologie. 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