{"id":10128,"date":"2026-02-15T18:52:34","date_gmt":"2026-02-15T17:52:34","guid":{"rendered":"http:\/\/www.cutislaxa.org\/?p=10128"},"modified":"2026-03-16T16:33:22","modified_gmt":"2026-03-16T15:33:22","slug":"le-parcours-du-patient-cutis-laxa","status":"publish","type":"post","link":"https:\/\/www.cutislaxa.org\/fr\/le-parcours-du-patient-cutis-laxa\/","title":{"rendered":"LE PARCOURS DU PATIENT CUTIS LAXA"},"content":{"rendered":"<p style=\"text-align: center;\"><strong>NOUVEAUX PARCOURS DU PATIENT<\/strong><\/p>\n<p>Nous avons d\u00e9velopp\u00e9 2 parcours du Patient bas\u00e9s sur les t\u00e9moignages de nos membres sur ce que c&rsquo;est de vivre avec une Cutis Laxa.<\/p>\n<p>Ces documents ont pour objectif d&rsquo;\u00eatre un outil pour les professionnels de sant\u00e9 et les patients durant une consultation pour les aider \u00e0 \u00e9tablir la meilleure prise en charge possible \u00e0 long terme.<\/p>\n<p>Ces parcours du Patient ont \u00e9t\u00e9 r\u00e9cemment mis \u00e0 jour pour mieux correspondre aux connaissances actuelles sur la Cutis Laxa.<\/p>\n<p>&nbsp;<\/p>\n<p style=\"text-align: center;\"><a href=\"https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2026\/03\/F-NewTemplate-ERNSkin-CL-Arteries-Lungs.pptx\">CUTIS LAXA AVEC SYMPT\u00d4MES ART\u00c9RIELS ET PULMONAIRES<\/a><\/p>\n<p style=\"text-align: center;\">C<a href=\"https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2026\/03\/F-NewTemplate-ERNSkin-CL-Neuro-Squelette.pptx\">UTIS LAXA AVEC SYMPT\u00d4MES NEUROLOGIQUES ET SQUELETTIQUES<\/a><\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>NOUVEAUX PARCOURS DU PATIENT Nous avons d\u00e9velopp\u00e9 2 parcours du Patient bas\u00e9s sur les t\u00e9moignages de nos membres sur ce que c&rsquo;est de vivre avec une Cutis Laxa. Ces documents ont pour objectif d&rsquo;\u00eatre un outil pour les professionnels de sant\u00e9 et les patients durant une consultation pour les aider \u00e0 \u00e9tablir la meilleure prise [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":18498,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[59,61,60,66],"tags":[],"class_list":["post-10128","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-number-mutations-fr","category-quoi-de-neuf","category-recherche","category-recherche-medecine-genetique"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.0 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>LE PARCOURS DU PATIENT CUTIS LAXA - CUTIS LAXA INTERNATIONALE<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.cutislaxa.org\/fr\/le-parcours-du-patient-cutis-laxa\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LE PARCOURS DU PATIENT CUTIS LAXA - CUTIS LAXA INTERNATIONALE\" \/>\n<meta property=\"og:description\" content=\"NOUVEAUX PARCOURS DU PATIENT Nous avons d\u00e9velopp\u00e9 2 parcours du Patient bas\u00e9s sur les t\u00e9moignages de nos membres sur ce que c&rsquo;est de vivre avec une Cutis Laxa. Ces documents ont pour objectif d&rsquo;\u00eatre un outil pour les professionnels de sant\u00e9 et les patients durant une consultation pour les aider \u00e0 \u00e9tablir la meilleure prise [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.cutislaxa.org\/fr\/le-parcours-du-patient-cutis-laxa\/\" \/>\n<meta property=\"og:site_name\" content=\"CUTIS LAXA INTERNATIONALE\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/CutisLaxaAssociation\/\" \/>\n<meta property=\"article:published_time\" content=\"2026-02-15T17:52:34+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-03-16T15:33:22+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2026\/03\/Patient-Jour-Cardio-F.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"964\" \/>\n\t<meta property=\"og:image:height\" content=\"543\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Marie-Claude\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Marie-Claude\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minute\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.cutislaxa.org\/fr\/le-parcours-du-patient-cutis-laxa\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.cutislaxa.org\/fr\/le-parcours-du-patient-cutis-laxa\/\"},\"author\":{\"name\":\"Marie-Claude\",\"@id\":\"https:\/\/www.cutislaxa.org\/#\/schema\/person\/2b5e58dca5a6f412607f985f2823d045\"},\"headline\":\"LE PARCOURS DU PATIENT CUTIS LAXA\",\"datePublished\":\"2026-02-15T17:52:34+00:00\",\"dateModified\":\"2026-03-16T15:33:22+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.cutislaxa.org\/fr\/le-parcours-du-patient-cutis-laxa\/\"},\"wordCount\":107,\"publisher\":{\"@id\":\"https:\/\/www.cutislaxa.org\/#organization\"},\"articleSection\":[\"Mutations\",\"Quoi de neuf\",\"Recherche\",\"Recherche - 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