{"id":6048,"date":"2017-12-08T23:37:16","date_gmt":"2017-12-08T23:37:16","guid":{"rendered":"http:\/\/www.cutislaxa.org\/list-doctors\/"},"modified":"2020-03-03T11:44:55","modified_gmt":"2020-03-03T11:44:55","slug":"list-doctors","status":"publish","type":"page","link":"https:\/\/www.cutislaxa.org\/fr\/list-doctors\/","title":{"rendered":"Liste de m\u00e9decins et\/ou chercheurs"},"content":{"rendered":"
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Liste de m\u00e9decins et\/ou chercheurs<\/h1>\n<\/div><\/section>
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Depuis quelques ann\u00e9es, des \u00e9quipes m\u00e9dicales ont commenc\u00e9 \u00e0 s\u2019int\u00e9resser de pr\u00e8s \u00e0 la Cutis Laxa, la France a mis en place les Centres de R\u00e9f\u00e9rence d\u00e9di\u00e9s aux maladies rares et des \u00e9quipes de recherche ont entam\u00e9 des travaux sur la compr\u00e9hension des m\u00e9canismes de la Cutis Laxa, ses origines g\u00e9n\u00e9tiques et \u00e9galement sur des pistes th\u00e9rapeutiques.<\/p>\n

Il existe donc aujourd\u2019hui dans le monde des \u00e9quipes \u00ab expertes \u00bb de la Cutis Laxa<\/strong> . Voici celles avec lesquelles nous sommes en contact r\u00e9gulier (par ordre alphab\u00e9tique des pays) :<\/p>\n

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Belgium <\/span><\/span><\/span><\/p>

UZ Gent<\/strong>
\nProf. Dr. Anne DE PAEPE, \u00a0Dr. B. CALLEWAERT, Dr. F. MALFAIT
\nDepartment of Pediatrics and medical genetics \u2013 De Pintelaan 185 \u2013 B-9000 Gent
\nTel : +32 (0)9 332 36 02 \u2013 Fax:+32 (0)9 332 49 70
\nE-mails : anne.depaepe@ugent.be<\/a> , bert.callewaert@ugent.be<\/a> , fransiska.malfait@ugent.be<\/a><\/p>\n <\/div> <\/div> <\/div><\/section>\n

France <\/span><\/span><\/span><\/p>

Centre de R\u00e9f\u00e9rence des Maladies G\u00e9n\u00e9tiques \u00a0\u00e0 Expression Cutan\u00e9e<\/strong>
\nAPHP – H\u00f4pital Necker Enfants Malades<\/strong><\/p>\n

Pr \u00a0Christine BODEMER
\nH\u00f4pital Necker \u2013 Service de Dermatologie \u2013 149 rue de S\u00e8vres \u2013 75743 Paris C\u00e9dex 15
\nTel :+33 144 494 337 – \u00a0Fax : +33 144 494 471
\nEmail : christine.bodemer@nck.ap-hop-paris.fr<\/a><\/p>\n

Pr \u00a0Smail HADJ-RABIA
\nH\u00f4pital Necker \u2013 Service de Dermatologie \u2013 149 rue de S\u00e8vres \u2013 75743 Paris C\u00e9dex 15
\nTel : 00 33 144 494 337 – \u00a0Fax : 00 33 144 494 471
\nEmail : sma\u00efl.hadl@inserm.fr<\/a><\/p>\n <\/div> <\/div> <\/div><\/section>\n

United States <\/span><\/span><\/span><\/p>

University of Pittsburgh<\/strong>
\nDr Zsolt URBAN PhD, Associate Professor of Human Genetics
\nGraduate School of Public Health \u00a0– A218 Crabtree Hall – 130 DeSoto Street – PA 15261 – Pittsburgh
\ntel. : (412) 648 8269 \u2013 Fax : (412) 624 3020
\nEmail : urbanz@pitt.edu<\/a> \u00a0 \u00a0 \u00a0 \u00a0 \u00a0Website : www.hgen.pitt.edu\/projects\/cutislaxa<\/a><\/p>\n

Tulane University Medical School<\/strong>
\nDr Eva MORAVA MD PhD,
\nProfessor, Pediatrics, Clinical biochemical geneticist,
\nHayward Genetics Center , SL#31, 1430 Tulane Ave, New Orleans LA 70112,
\ntel. : +1 (504) 9885101 –\u00a0Email : emoravakozicz@tulane.edu<\/a><\/p>\n <\/div> <\/div> <\/div><\/section>\n<\/div><\/p><\/div>

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Mais il y a \u00e9galement de par le monde des m\u00e9decins capables d\u2019identifier cette maladie rare, d\u2019orienter les malades vers les sp\u00e9cialistes n\u00e9cessaires, et de les prendre en charge<\/strong>. Voici ceux dont nous avons les coordonn\u00e9es :<\/p>\n

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Argentina <\/span><\/span><\/span><\/p>

Buenos Aires<\/strong><\/p>\n