{"id":4314,"date":"2018-02-16T17:17:03","date_gmt":"2018-02-16T17:17:03","guid":{"rendered":"http:\/\/www.cutislaxa.org\/donation-page\/"},"modified":"2024-12-11T11:52:59","modified_gmt":"2024-12-11T10:52:59","slug":"donation-page","status":"publish","type":"page","link":"https:\/\/www.cutislaxa.org\/fr\/donation-page\/","title":{"rendered":"Donation Page"},"content":{"rendered":"
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<\/div>

ADHERER<\/b><\/h1>
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Notre Association est n\u00e9e le 11 Novembre 2001. Nous sommes un petit groupe de\u00a0 familles diss\u00e9min\u00e9es aux quatre coins du globe et concern\u00e9es par cette maladie g\u00e9n\u00e9tique rare. Outre la rupture de l\u2019isolement des malades , l\u2019information des milieux m\u00e9dicaux pour les sensibiliser \u00e0 cette maladie mal connue est un de nos principaux objectifs. Il est difficilement acceptable de constater qu\u2019\u00e0 notre \u00e9poque des personnes malades ne sont pas prises en charge par certains m\u00e9decins par simple m\u00e9connaissance de leur syndrome et que de ce fait nombreux sont ceux qui ne sont pas, ou tr\u00e8s tardivement, diagnostiqu\u00e9s.<\/p>\n

Aujourd\u2019hui, gr\u00e2ce \u00e0 la pr\u00e9sence de C\u00e9cile dans diff\u00e9rentes \u00e9missions de t\u00e9l\u00e9vision ( T\u00e9l\u00e9thon, \u00ab\u00a0\u00e7a se discute\u00a0\u00bb, \u00ab\u00a0reportages\u00a0\u00bb\u2026\u2026) et \u00e0 notre site internet nous avons pu nous conna\u00eetre, nous regrouper, \u00e9changer nos larmes et nos rires, rompre la solitude dans laquelle chacun vivait, mais aussi et surtout continuer \u00e0 aider la recherche . Beaucoup de travail a d\u00e9j\u00e0 \u00e9t\u00e9 fait, mais beaucoup nous attend encore ………..<\/p>\n

Nous avons besoin de vous.<\/span><\/h5>\n

Nous prenons l\u2019engagement de vous tenir inform\u00e9s de tout ce qui touche de pr\u00e8s ou de loin \u00e0 la CUTIS LAXA.<\/p>\n<\/div><\/section><\/p><\/div>

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Vous souhaitez nous aider :<\/p>\n

remplissez le formulaire ci-dessous et demandez-nous nos coordonn\u00e9es bancaires (IBAN) par email \u00e0 mcjlboiteux@aol.com
\n<\/strong><\/p>\n

Nous avons du retirer nos coordonn\u00e9es bancaires de notre site en raison d’actes malveillants sur notre compte bancaire.<\/p>\n

Vous pouvez n\u00e9anmoins adh\u00e9rer en ligne via notre page du site HelloAsso \u00e0 l’aide du lien ci-dessous<\/p>\n

Adh\u00e9rer via HelloAsso<\/a><\/p>\n<\/div><\/section>
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Vous souhaitez nous aider :<\/strong><\/h3>\n<\/div>\n

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CUTIS LAXA INTERNATIONALE
\n138 Impasse Champs Gervais
\nF-74890 – Bons en Chablais
\nFrance<\/p>\n

IBAN : FR76 1240 6001 2400 1806 3980 297
\nBIC : AGRIFRPP824<\/p>\n<\/div><\/section>
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Un re\u00e7u fiscal vous sera adress\u00e9 pour le montant de votre ch\u00e8que (adh\u00e9sion et\/ou don). Ce re\u00e7u, joint \u00e0 votre d\u00e9claration de revenus vous permettra d’avoir une d\u00e9duction fiscale de 60% du montant de votre ch\u00e8que. Ainsi, un ch\u00e8que de 100 \u20ac ne vous revient qu\u2019\u00e0 40 \u20ac apr\u00e8s la d\u00e9duction fiscale et nous permet d\u2019agir deux fois plus.<\/p>\n<\/div><\/section>
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Les informations recueillies ici sont n\u00e9cessaires pour la gestion administrative de votre adh\u00e9sion et\/ou don. Elles font l\u2019objet d\u2019un traitement informatique et sont destin\u00e9es au secr\u00e9tariat de l\u2019association. En application des articles 39 et suivants de la loi du 6 janvier 1978 modifi\u00e9e, vous b\u00e9n\u00e9ficiez d\u2019un droit d\u2019acc\u00e8s et de rectification aux informations qui vous concernent,\u00a0 en vous adressant directement au si\u00e8ge de notre Association (adresse mentionn\u00e9e ci-dessus). Vous pouvez \u00e9galement, et \u00e0 tout moment, vous d\u00e9sabonner de l\u2019envoi \u00e9lectronique de notre newsletter\u00a0 en nous adressant un email avec la mention \u00ab se d\u00e9sabonner \u00bb \u00e0 : mcjlboiteux@aol.com<\/a><\/p>\n

\u00a0<\/em><\/p>\n<\/div><\/section><\/p><\/div>

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