{"id":3772,"date":"2017-12-01T16:13:33","date_gmt":"2017-12-01T16:13:33","guid":{"rendered":"http:\/\/www.cutislaxa.org\/legal\/"},"modified":"2018-02-23T19:44:33","modified_gmt":"2018-02-23T19:44:33","slug":"legal","status":"publish","type":"page","link":"https:\/\/www.cutislaxa.org\/fr\/legal\/","title":{"rendered":"Informations L\u00e9gales"},"content":{"rendered":"

Informations L\u00e9gales<\/h3>\n

IDENTITE<\/strong><\/p>\n

Ce site est sous l\u2019enti\u00e8re responsabilit\u00e9 de l\u2019association mentionn\u00e9e ci-dessous<\/p>\n

CUTIS LAXA INTERNATIONALE<\/p>\n

138 Impasse de Champs Gervais,\u00a074890 Bons en Chablais,France,\u00a0Tel\/Fax\u00a0: 33 (0)4 56 30 74 43<\/p>\n

e-mail\u00a0: mcjlboiteux@aol.com<\/a>,<\/p>\n

Association \u00e0 but non-lucratif selon la loi fran\u00e7aise de 1901<\/p>\n

Enregistr\u00e9e sous le N\u00b0 0173004943 \u00e0 la Pr\u00e9fecture de La Rochelle (Charente Maritime \u2013 France), \u00e0 la date du 11 Novembre 2001.<\/p>\n

Publi\u00e9e au Journal Officiel du 15 D\u00e9cembre 2001<\/p>\n

N\u00b0SIRET\u00a0: 44251763700017<\/p>\n

Agr\u00e9ment National du Minist\u00e8re de la Sant\u00e9 (France) par arr\u00eat\u00e9 du 11 Ao\u00fbt 2006, publi\u00e9 le 24 Ao\u00fbt 2006. Agr\u00e9ment renouvel\u00e9 par le d\u00e9cret du 11 Ao\u00fct 2011 pour une p\u00e9riode de 5 ans.<\/p>\n<\/div><\/section>
\n

<\/span><\/span><\/div><\/p><\/div>\n
MISE EN GARDE<\/h5>\n

Le seul et unique but de ce site est d\u2019apporter des informations. Il ne se substitue en aucune mani\u00e8re aux professionnels m\u00e9dicaux, ni ne doit remplacer la relation \u00e9tablie entre le patient, ses m\u00e9decins, et tous autres intervenants m\u00e9dicaux et soignants. Nous ne faisons la promotion d\u2019aucun traitement, ni d\u2019aucun praticien. Toute information est strictement gratuite et fournie sans garantie.\u00a0 Toutes questions concernant le diagnostic, le suivi m\u00e9dical, la mise en place d\u2019un nouveau traitement, la modification d\u2019un traitement en cours, la prise en charge des soins ou toutes autres questions d\u2019ordre m\u00e9dical doivent \u00eatre discut\u00e9es avec votre \u00e9quipe m\u00e9dicale habituelle.<\/p>\n

CONTENU EDITORIAL<\/h5>\n

Les pages de ce site sont r\u00e9dig\u00e9es et traduites uniquement par les membres du bureau de l’association.<\/p>\n

Toutes les informations m\u00e9dicales et tous les contenus relatifs \u00e0 la sant\u00e9 sont v\u00e9rifi\u00e9s et valid\u00e9s par le Centre de R\u00e9f\u00e9rence MAGEC (Maladies G\u00e9n\u00e9tiques \u00e0 Expression Cutan\u00e9e \u00e0 l’H\u00f4pital Necker – Paris – France), sauf mention sp\u00e9cifique indiqu\u00e9e sur la page concern\u00e9e.<\/p>\n

Le responsable \u00e9ditorial est Madame Marie-Claude BOITEUX, Pr\u00e9sidente de l’Association.<\/p>\n

CONFIDENTIALITE<\/h5>\n

Les informations personnelles concernant les visiteurs de notre site, y compris leur identit\u00e9, sont confidentielles. Le responsable du site s\u2019engage sur l\u2019honneur \u00e0 respecter les conditions l\u00e9gales de confidentialit\u00e9 applicables en France et \u00e0 ne pas divulguer ces informations \u00e0 des tiers.<\/p>\n

Nous garantissons \u00e0 chaque patient, chaque famille de patient, la confidentialit\u00e9 des informations qui nous sont transmises. Seules pourraient \u00eatre transmises, soit \u00e0 d\u2019autres patients\/familles, soit \u00e0 des \u00e9quipes m\u00e9dicales, les informations pour lesquelles une autorisation de transmission aura \u00e9t\u00e9 donn\u00e9e.<\/p>\n

TOUTE UTILISATION, REPRODUCTION, COPIE OU AUTRE DES PHOTOS et\/ou DES SCHEMAS DE CE SITE EST STRICTEMENT INTERDITE.<\/span><\/p>\n<\/div><\/section><\/div>

FINANCEMENTS<\/h5>\n

Notre site est h\u00e9berg\u00e9 gratuitement par ORPHANET. Sa conception, sa r\u00e9alisation et ses mises \u00e0 jour sont effectu\u00e9s par des b\u00e9n\u00e9voles. Les frais \u00e9ventuels li\u00e9s \u00e0 la cr\u00e9ation et \u00e0 la maintenance de notre site (logiciels entre autres) sont pris en charge int\u00e9gralement par notre association. Nous ne recevons aucune subvention sp\u00e9cifique pour notre site, nous n\u2019acceptons aucune publicit\u00e9, ni ne recevons aucuns fonds de nature publicitaire ou commerciale.<\/p>\n

Notre association fonctionne gr\u00e2ce aux sources de financement suivantes :<\/p>\n

    \n
  • Adh\u00e9sions et\/ou dons de personnes priv\u00e9es ;<\/li>\n
  • Collecte de cartouches jet d’encre et laser usag\u00e9es, ainsi que de t\u00e9l\u00e9phones portables usag\u00e9s, que nous vendons \u00e0 un recycleur\u00a0 ;<\/li>\n
  • Quelques petites subventions de collectivit\u00e9s publiques locales<\/li>\n<\/ul>\n
    LIENS VERS D\u2019AUTRES SITES<\/h5>\n

    Ce site contient des adresses et des liens directs vers les sites d\u2019institutions, groupements, f\u00e9d\u00e9rations ou associations en lien avec le handicap en g\u00e9n\u00e9ral et les maladies rares, orphelines et\/ou g\u00e9n\u00e9tiques, en particulier . Ces liens n\u2019ont qu\u2019un but informatif. Nous ne garantissons pas le contenu de ces sites et ne pouvons en aucun cas en \u00eatre tenus responsables<\/p>\n

    MISES A JOUR<\/h5>\n

    La date de mise \u00e0 jour de chaque page est indiqu\u00e9e en bas de celle-ci.<\/p>\n

    CONTACT<\/h5>\n

    L\u2019adresse email pour nous contacter est mentionn\u00e9e en bas de chaque page de notre site<\/p>\n<\/div><\/section><\/div><\/p>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"open","template":"","meta":{"footnotes":""},"class_list":["post-3772","page","type-page","status-publish","hentry"],"yoast_head":"\nInformations L\u00e9gales - CUTIS LAXA INTERNATIONALE<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.cutislaxa.org\/fr\/legal\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Informations L\u00e9gales - CUTIS LAXA INTERNATIONALE\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.cutislaxa.org\/fr\/legal\/\" \/>\n<meta property=\"og:site_name\" content=\"CUTIS LAXA INTERNATIONALE\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/CutisLaxaAssociation\/\" \/>\n<meta property=\"article:modified_time\" content=\"2018-02-23T19:44:33+00:00\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data1\" content=\"5 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.cutislaxa.org\/fr\/legal\/\",\"url\":\"https:\/\/www.cutislaxa.org\/fr\/legal\/\",\"name\":\"Informations L\u00e9gales - 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