{"id":8002,"date":"2019-01-15T16:15:44","date_gmt":"2019-01-15T16:15:44","guid":{"rendered":"http:\/\/www.cutislaxa.org\/?p=8002"},"modified":"2019-01-27T15:12:57","modified_gmt":"2019-01-27T15:12:57","slug":"telefono-de-ayuda-de-enfermedades-rares-en-el-mundo","status":"publish","type":"post","link":"https:\/\/www.cutislaxa.org\/es\/telefono-de-ayuda-de-enfermedades-rares-en-el-mundo\/","title":{"rendered":"Tel\u00e9fono de ayuda de enfermedades rares en el mundo"},"content":{"rendered":"\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n
Tel\u00e9fono de ayuda de enfermedades rares en el mundo
\n<\/strong><\/td>\n<\/tr>\n
Pays<\/strong><\/td>\nOrganisation\u00a0\u00a0\u00a0\u00a0\u00a0<\/strong><\/td>\nNum\u00e9ro d\u2019appel & autres moyens de contact<\/strong><\/td>\n<\/tr>\n
Canada<\/td>\nRare Disease Information and Resource Centre<\/td>\n+385 12441393\u00a0 –\u00a0 info@rqmo.org<\/a><\/u>
\nwww.rqmo.org\/rare-disease-information-and-resource-centre\/<\/a><\/u><\/td>\n<\/tr>\n
Croatia \u00a0 *<\/td>\nCroatian Help Line for Rare Diseases<\/td>\n+385 12441393\u00a0 –\u00a0 rijetke.bolesti@gmail.com<\/a><\/u>
\nwww.rijetke-bolesti.hr\/rare-diseases-croatia<\/a><\/u>
\nFacebook group<\/a><\/u><\/td>\n<\/tr>\n
Denmark *<\/td>\nRare Diseases Denmark<\/td>\n+45 33140010\u00a0 –\u00a0 helpline@sjaeldnediagnoser.dk<\/a><\/u>
\nsjaeldnediagnoser.dk\/helpline\/<\/a><\/u><\/td>\n<\/tr>\n
France *<\/td>\nMaladies Rares Info Services (MRIS)<\/td>\n+ 33 156538136\u00a0 –\u00a0 info-services@maladiesrares.org<\/a><\/u>
\nwww.maladiesraresinfo.org<\/a><\/u><\/td>\n<\/tr>\n
Germany<\/td>\nACHSE Betroffenen- und Angeh\u00f6rigenberatung<\/td>\n+49 3033007080\u00a0 –\u00a0 www.achse-online.de<\/a><\/u><\/td>\n<\/tr>\n
Hungary *<\/td>\nLifebelt<\/td>\n+36 617904533\u00a0 –\u00a0 mentoov@rirosz.hu<\/a><\/u>\u00a0 –\u00a0 mentoov.rirosz.hu\/<\/a><\/u><\/td>\n<\/tr>\n
Ireland *<\/td>\nNational Rare Diseases Office (NRDO)<\/td>\n+353 1800 24 03 65 or\u00a0+ 353 18545065
\nrare.diseases@mater.ie<\/a><\/u>\u00a0 –\u00a0 www.hse.ie\/eng\/services<\/a><\/u><\/td>\n<\/tr>\n
Italy *<\/td>\nUniversit\u00e0 di Padova, Coordinating Centre for Rare Diseases, Veneto Region<\/td>\n+ 39 049 82 15\u00a0700\u00a0 –\u00a0 malattierare@pediatria.unipd.it<\/a><\/u><\/td>\n<\/tr>\n
Italy *<\/td>\nTelefono Verde Malattie Rare<\/td>\n+39 800896949\u00a0 – https:\/\/www.iss.it\/?p=171<\/a><\/u><\/td>\n<\/tr>\n
Italy *<\/td>\nCentro di ascolto malattie rare<\/td>\n+39 800 880101\u00a0 –\u00a0 http:\/\/www.regione.toscana.it\/-\/centro-di-ascolto-per-le-malattie-rare<\/a><\/u><\/td>\n<\/tr>\n
Italy *<\/td>\nCentro di ascolto per le malattie rare del Piemonte e della Valle d\u2019Aosta<\/td>\n+39346.1059486\u00a0 +39339.5203554 –\u00a0 segreteria@a-rare.it <\/a><\/u><\/td>\n<\/tr>\n
Mexico<\/td>\nAcceSalud<\/td>\naccesalud@femexer.org<\/a><\/u><\/td>\n<\/tr>\n
Norway<\/td>\nNorwegian National Advisory Unit on Rare Disorders Oslo University Hospital<\/td>\n+47 23 02 69 75\u00a0 –\u00a0 liegen@ous-hf.no<\/a><\/u>
\nHelsenorge.no\/Sjeldnediagnoser<\/a><\/u><\/td>\n<\/tr>\n
Portugal *<\/td>\nLinha Rara<\/td>\n+351 300505700\u00a0 –\u00a0 info@rarissimas.pt<\/a><\/u><\/td>\n<\/tr>\n
Romania *<\/td>\nRomanian National Alliance for Rare Disease (NoRo Help Line)<\/td>\n+40 260611214\u00a0 –\u00a0 office@apwromania.ro<\/a><\/u><\/td>\n<\/tr>\n
Romania *<\/td>\nRomanian\u00a0Myasthenia\u00a0Gravis\u00a0Info Centre<\/td>\n+40 744704399\u00a0 –\u00a0 asociatia.miastenia@gmail.com<\/a><\/u><\/td>\n<\/tr>\n
Serbia *<\/td>\nNORBS<\/td>\n+381 800333103\u00a0 –\u00a0 office@norbs.rs<\/a><\/u>\u00a0 – www.norbs.rs\/<\/a><\/u><\/td>\n<\/tr>\n
Spain *<\/td>\nSIO Feder<\/td>\n+34 918221725\u00a0 –\u00a0 sio@enfermedades-raras.org<\/a><\/u><\/td>\n<\/tr>\n
Switzerland *<\/td>\nInfos Maladies Rares<\/td>\n+41 848314372\u00a0 –\u00a0 contact@infomaladiesrares.ch<\/a><\/u>
\nwww.info-maladies-rares.ch\/<\/a><\/u><\/td>\n<\/tr>\n
Switzerland *<\/td>\nSeltene Krankheiten<\/td>\n+41 442663535\u00a0 –\u00a0 selten@kispi.uzh.ch<\/a><\/u>\u00a0 –\u00a0 www.kispi.uzh.ch<\/a><\/u><\/td>\n<\/tr>\n
USA<\/td>\nGARD Genetic and Rare Diseases Information Center<\/td>\n+1 8882052311<\/td>\n<\/tr>\n
Wolrdwide<\/td>\nThinkGenetic<\/td>\nhttps:\/\/www.thinkgenetic.com\/<\/a><\/p>\n

medical advice from Genetic counselors : \u00a0https:\/\/www.thinkgenetic.com\/contact-counselor<\/a><\/u><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n","protected":false},"excerpt":{"rendered":"

Tel\u00e9fono de ayuda de enfermedades rares en el mundo Pays Organisation\u00a0\u00a0\u00a0\u00a0\u00a0 Num\u00e9ro d\u2019appel & autres moyens de contact Canada Rare Disease Information and Resource Centre +385 12441393\u00a0 –\u00a0 info@rqmo.org www.rqmo.org\/rare-disease-information-and-resource-centre\/ Croatia \u00a0 * Croatian Help Line for Rare Diseases +385 12441393\u00a0 –\u00a0 rijetke.bolesti@gmail.com www.rijetke-bolesti.hr\/rare-diseases-croatia Facebook group Denmark * Rare Diseases Denmark +45 33140010\u00a0 –\u00a0 helpline@sjaeldnediagnoser.dk […]<\/p>\n","protected":false},"author":2,"featured_media":8035,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[80,63,76,61],"tags":[],"class_list":["post-8002","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-legislacion-sociedad","category-legislation-society-fr","category-noticias","category-quoi-de-neuf"],"yoast_head":"\nTel\u00e9fono de ayuda de enfermedades rares en el mundo - 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