{"id":19875,"date":"2026-07-15T16:22:36","date_gmt":"2026-07-15T14:22:36","guid":{"rendered":"https:\/\/www.cutislaxa.org\/?p=19875"},"modified":"2026-10-06T16:29:45","modified_gmt":"2026-10-06T14:29:45","slug":"3er-congreso-mundial-sobre-enfermedades-raras-de-la-piel-wcrsd","status":"publish","type":"post","link":"https:\/\/www.cutislaxa.org\/es\/3er-congreso-mundial-sobre-enfermedades-raras-de-la-piel-wcrsd\/","title":{"rendered":"3er Congreso Mundial sobre Enfermedades Raras de la Piel (WCRSD)"},"content":{"rendered":"

1st-3rd July 2026:<\/em><\/strong><\/p>\n

\"\"<\/p>\n

El 3er Congreso Mundial sobre Enfermedades Raras de la Piel (WCRSD) se celebr\u00f3 en el Palais des Congr\u00e8s de Versalles. Para esta 3\u00aa edici\u00f3n, una sesi\u00f3n plenaria se dedic\u00f3 \u00edntegramente a los pacientes. Como miembros del comit\u00e9 organizador, hab\u00edamos decidido destacar el trabajo que realizan las asociaciones. El tema de esta sesi\u00f3n fue la salud mental en enfermedades dermatol\u00f3gicas raras.<\/p>\n

\"\"<\/p>\n

\"\"<\/p>\n

6 ponentes presentaron las publicaciones y trabajos de sus asociaciones:<\/p>\n

Salud mental en enfermedades raras;<\/p>\n

PRIDD: validaci\u00f3n del impacto de vivir con una enfermedad rara de la piel en la salud mental;<\/p>\n

El estado psicosocial de soledad, aislamiento social y angustia psicol\u00f3gica en pacientes con albinismo;<\/p>\n

Investigaci\u00f3n cualitativa: el profundo impacto de vivir con ictiosis en la salud mental;<\/p>\n

La interacci\u00f3n de factores psicosociales y el bienestar en mujeres con un ni\u00f1o enfermo: el impacto del nivel de dependencia del ni\u00f1o;<\/p>\n

La gesti\u00f3n de las necesidades de salud mental de pacientes con una enfermedad rara de la piel: la Red de Apoyo Generalizada para la Psoriasis Pustular.<\/p>\n

Una sesi\u00f3n muy rica que result\u00f3 de gran inter\u00e9s para el p\u00fablico<\/p>\n

Un congreso tan interesante como siempre: momentos de intercambio con \u00abcolegas\u00bb asociativos,<\/p>\n

\"\" \"\"<\/p>\n

\"\" <\/p>\n

\"\"<\/p>\n

presentaciones enriquecedoras<\/p>\n

\"\"<\/p>\n

nos har\u00e1 conocer,<\/p>\n

\"\"<\/p>\n

un p\u00f3ster,<\/p>\n

\"\"<\/p>\n

una sesi\u00f3n dedicada a la Cutis Laxa<\/p>\n

\"\" \"\"<\/p>\n

y una magn\u00edfica velada en los establos del castillo.<\/p>\n

\"\" \"\"<\/p>\n

Tambi\u00e9n fue una oportunidad para conocer a los miembros de Globalskin en una sesi\u00f3n de trabajo sobre enfermedades dermatol\u00f3gicas raras.<\/p>\n

\"\" \"\"<\/p>\n

\"\"<\/p>\n

\n","protected":false},"excerpt":{"rendered":"

1st-3rd July 2026: El 3er Congreso Mundial sobre Enfermedades Raras de la Piel (WCRSD) se celebr\u00f3 en el Palais des Congr\u00e8s de Versalles. Para esta 3\u00aa edici\u00f3n, una sesi\u00f3n plenaria se dedic\u00f3 \u00edntegramente a los pacientes. Como miembros del comit\u00e9 organizador, hab\u00edamos decidido destacar el trabajo que realizan las asociaciones. El tema de esta sesi\u00f3n […]<\/p>\n","protected":false},"author":2,"featured_media":19835,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[77,82,74,79,76],"tags":[],"class_list":["post-19875","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-encuentros-acontecimientos-y-manifestaciones","category-fotos","category-investigacion","category-investigacion-medicina-genetica","category-noticias"],"yoast_head":"\n3er Congreso Mundial sobre Enfermedades Raras de la Piel (WCRSD) - CUTIS LAXA INTERNATIONALE<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.cutislaxa.org\/es\/3er-congreso-mundial-sobre-enfermedades-raras-de-la-piel-wcrsd\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"3er Congreso Mundial sobre Enfermedades Raras de la Piel (WCRSD) - CUTIS LAXA INTERNATIONALE\" \/>\n<meta property=\"og:description\" content=\"1st-3rd July 2026: El 3er Congreso Mundial sobre Enfermedades Raras de la Piel (WCRSD) se celebr\u00f3 en el Palais des Congr\u00e8s de Versalles. Para esta 3\u00aa edici\u00f3n, una sesi\u00f3n plenaria se dedic\u00f3 \u00edntegramente a los pacientes. Como miembros del comit\u00e9 organizador, hab\u00edamos decidido destacar el trabajo que realizan las asociaciones. 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