{"id":19743,"date":"2026-06-20T18:10:51","date_gmt":"2026-06-20T16:10:51","guid":{"rendered":"https:\/\/www.cutislaxa.org\/?p=19743"},"modified":"2026-10-02T18:13:27","modified_gmt":"2026-10-02T16:13:27","slug":"figuras-de-salud-mental-en-enfermedades-raras-de-la-piel","status":"publish","type":"post","link":"https:\/\/www.cutislaxa.org\/es\/figuras-de-salud-mental-en-enfermedades-raras-de-la-piel\/","title":{"rendered":"Figuras de salud mental en enfermedades raras de la piel"},"content":{"rendered":"<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-8054 aligncenter\" src=\"https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2019\/01\/rarebarometer-logo-high-253x300.jpg\" alt=\"\" width=\"194\" height=\"230\" srcset=\"https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2019\/01\/rarebarometer-logo-high-253x300.jpg 253w, https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2019\/01\/rarebarometer-logo-high-768x909.jpg 768w, https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2019\/01\/rarebarometer-logo-high-595x705.jpg 595w, https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2019\/01\/rarebarometer-logo-high-450x533.jpg 450w, https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2019\/01\/rarebarometer-logo-high.jpg 782w\" sizes=\"auto, (max-width: 194px) 100vw, 194px\" \/><\/p>\n<p>En junio de 2026, RareBarometer, la organizaci\u00f3n de encuestas de Eurordis, public\u00f3 los resultados de la encuesta realizada en 17 pa\u00edses europeos entre el 11 de septiembre y el 14 de diciembre de 2025. 130 personas que representaban 13 enfermedades raras de la piel respondieron.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-19733 aligncenter\" src=\"https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2026\/10\/RareBaro2-300x169.jpg\" alt=\"\" width=\"343\" height=\"193\" srcset=\"https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2026\/10\/RareBaro2-300x169.jpg 300w, https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2026\/10\/RareBaro2-768x431.jpg 768w, https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2026\/10\/RareBaro2-705x396.jpg 705w, https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2026\/10\/RareBaro2.jpg 1029w\" sizes=\"auto, (max-width: 343px) 100vw, 343px\" \/><\/p>\n<p>Las cifras hablan por s\u00ed solas:<\/p>\n<ul>\n<li>7 de cada 10 personas que viven con una enfermedad rara de la piel y sus familias informan de mala salud mental.<\/li>\n<li>El 50% reporta s\u00edntomas depresivos moderados a graves (8 veces m\u00e1s que la poblaci\u00f3n europea (6,1%))<\/li>\n<li>El 44% reporta s\u00edntomas cl\u00ednicos significativos de ansiedad (8 veces m\u00e1s que la poblaci\u00f3n europea (5,4%))<\/li>\n<li>El 39% se siente solo (de 4 a 20 veces m\u00e1s que la poblaci\u00f3n europea (2 a 10%))<\/li>\n<li>El 37% reporta pensamientos suicidas en los \u00faltimos 6 meses (6 a 12 veces m\u00e1s que la poblaci\u00f3n europea (3 a 6%))<\/li>\n<li>El 48% reporta al menos 2 dificultades graves de salud mental<\/li>\n<li>El 28% reporta al menos 3 dificultades graves de salud mental<\/li>\n<li>El 14% reporta al menos 4 dificultades graves de salud mental<\/li>\n<li>Mientras que el 76% dice necesitar apoyo psicol\u00f3gico profesional, solo el 46% lo recibe\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li>25% de atenci\u00f3n a un m\u00e9dico de cabecera o enfermero<\/li>\n<li>El 21% de un profesional no es reembolsado ni pagado por s\u00ed mismo (psic\u00f3logo, psicoterapeuta, psiquiatra)<\/li>\n<li>El 17% de un profesional es reembolsado total o parcialmente (psic\u00f3logo, psicoterapeuta, psiquiatra)<\/li>\n<li>11% de un Centro de Especializaci\u00f3n (equipo multidisciplinar especializado en enfermedades raras o no diagnosticadas)<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>En junio de 2026, RareBarometer, la organizaci\u00f3n de encuestas de Eurordis, public\u00f3 los resultados de la encuesta realizada en 17 pa\u00edses europeos entre el 11 de septiembre y el 14 de diciembre de 2025. 130 personas que representaban 13 enfermedades raras de la piel respondieron. Las cifras hablan por s\u00ed solas: 7 de cada 10 [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":19729,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[74,79,80,76],"tags":[],"class_list":["post-19743","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-investigacion","category-investigacion-medicina-genetica","category-legislacion-sociedad","category-noticias"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.0 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Figuras de salud mental en enfermedades raras de la piel - CUTIS LAXA INTERNATIONALE<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.cutislaxa.org\/es\/figuras-de-salud-mental-en-enfermedades-raras-de-la-piel\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Figuras de salud mental en enfermedades raras de la piel - CUTIS LAXA INTERNATIONALE\" \/>\n<meta property=\"og:description\" content=\"En junio de 2026, RareBarometer, la organizaci\u00f3n de encuestas de Eurordis, public\u00f3 los resultados de la encuesta realizada en 17 pa\u00edses europeos entre el 11 de septiembre y el 14 de diciembre de 2025. 130 personas que representaban 13 enfermedades raras de la piel respondieron. Las cifras hablan por s\u00ed solas: 7 de cada 10 [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.cutislaxa.org\/es\/figuras-de-salud-mental-en-enfermedades-raras-de-la-piel\/\" \/>\n<meta property=\"og:site_name\" content=\"CUTIS LAXA INTERNATIONALE\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/CutisLaxaAssociation\/\" \/>\n<meta property=\"article:published_time\" content=\"2026-06-20T16:10:51+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-10-02T16:13:27+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.cutislaxa.org\/wp-content\/uploads\/2026\/10\/RareBaro1.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1032\" \/>\n\t<meta property=\"og:image:height\" content=\"579\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Marie-Claude\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"Marie-Claude\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutos\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.cutislaxa.org\/es\/figuras-de-salud-mental-en-enfermedades-raras-de-la-piel\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.cutislaxa.org\/es\/figuras-de-salud-mental-en-enfermedades-raras-de-la-piel\/\"},\"author\":{\"name\":\"Marie-Claude\",\"@id\":\"https:\/\/www.cutislaxa.org\/#\/schema\/person\/2b5e58dca5a6f412607f985f2823d045\"},\"headline\":\"Figuras de salud mental en enfermedades raras de la piel\",\"datePublished\":\"2026-06-20T16:10:51+00:00\",\"dateModified\":\"2026-10-02T16:13:27+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.cutislaxa.org\/es\/figuras-de-salud-mental-en-enfermedades-raras-de-la-piel\/\"},\"wordCount\":238,\"publisher\":{\"@id\":\"https:\/\/www.cutislaxa.org\/#organization\"},\"articleSection\":[\"Investigaci\u00f3n\",\"Investigaci\u00f3n- Medicina - 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