{"id":17656,"date":"2025-07-03T16:46:26","date_gmt":"2025-07-03T14:46:26","guid":{"rendered":"https:\/\/www.cutislaxa.org\/?p=17656"},"modified":"2025-09-03T16:47:48","modified_gmt":"2025-09-03T14:47:48","slug":"discapacidades-y-barreras-de-las-enfermedades-raras-de-la-piel","status":"publish","type":"post","link":"https:\/\/www.cutislaxa.org\/es\/discapacidades-y-barreras-de-las-enfermedades-raras-de-la-piel\/","title":{"rendered":"Discapacidades y Barreras de las enfermedades raras de la piel"},"content":{"rendered":"<p><strong><u>Reconocer las discapacidades y las barreras de las enfermedades raras de la piel: las cifras clave de la encuesta del bar\u00f3metro Rare<\/u><\/strong><\/p>\n<ul>\n<li>7 de cada 10 personas con una enfermedad dermatol\u00f3gica rara viven con discapacidades;<\/li>\n<li>El 66% de los encuestados tiene dificultades en al menos dos de las siguientes actividades: Ver, o\u00edr, caminar\/subir escaleras, recordar\/concentrarse, cuidarse, comunicarse;<\/li>\n<li>Al 59% le resulta dif\u00edcil o muy dif\u00edcil obtener apoyos p\u00fablicos como: ayuda a domicilio, asistencia financiera, tecnolog\u00eda de asistencia, ayudas para la movilidad u otros apoyos;<\/li>\n<li>el 52% informa discriminaci\u00f3n relacionada con enfermedades raras de la piel o discapacidad en el sistema de salud, en el empleo, en la educaci\u00f3n, en la vivienda, en lugares p\u00fablicos y otros;<\/li>\n<li>El 14% de las personas que viven con una enfermedad rara dermatol\u00f3gica est\u00e1n desempleadas (en comparaci\u00f3n, la tasa de personas desempleadas fue del 6,1% en la poblaci\u00f3n general en Europa en 2023)<\/li>\n<\/ul>\n","protected":false},"excerpt":{"rendered":"<p>Reconocer las discapacidades y las barreras de las enfermedades raras de la piel: las cifras clave de la encuesta del bar\u00f3metro Rare 7 de cada 10 personas con una enfermedad dermatol\u00f3gica rara viven con discapacidades; El 66% de los encuestados tiene dificultades en al menos dos de las siguientes actividades: Ver, o\u00edr, caminar\/subir escaleras, recordar\/concentrarse, [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":8055,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[80,76],"tags":[],"class_list":["post-17656","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-legislacion-sociedad","category-noticias"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.0 - 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